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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Seattle, WA

Does anyone have involuntary limb movement or jerking?

December 22, 2015
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Answer Summary

Members connected over the shared experience of involuntary muscle jerking and twitching, with many noting that these movements tend to worsen... Read more

Members connected over the shared experience of involuntary muscle jerking and twitching, with many noting that these movements tend to worsen at night or during moments of relaxation, sometimes becoming violent enough to accidentally hit a partner or fling objects across a room. Several members found relief through daily magnesium supplementation (either pills or topical spray), vitamin B6, staying well-hydrated, tonic water before bed, and in some cases medications like Mirapex for restless leg syndrome or iron supplements when ferritin levels were low. A recurring theme was the frustration and embarrassment of unpredictable spasms in public or daily activities, coupled with reassurance that these symptoms are common among the community and manageable with the right combination of nutrients, hydration, and sometimes medication adjustments.

A MyFibroTeam Member

They said my leg movement was because I had low iron. Maybe get your ferritin levels checked? They put my on iron pills. It hasn't helped much yet but they said it would take a few months.

December 23, 2015
A MyFibroTeam Member

I started taking magnesium. I took calcium awhile ago.

December 29, 2015
A MyFibroTeam Member

Patricia, magnesium and vitamin b6 make each other work better. They are both good for these types of weird body movements. Also, calcium is a natural pain reliever. Calcium and vitamin c are a good combo. I absolutely have to have these on hand, I take them all of the time. The mag and Cal are good also for ibs and constipation. Hope this helps you!

December 27, 2015
A MyFibroTeam Member

I started the taking the magnesium pill I hope it works.

December 26, 2015
A MyFibroTeam Member

A lot of times poor hydration can be the culprit to Charlie Horse and other muscle spasms. It is imperative, especially with this disease that you make sure you drink an above average amount of fluids, nothing diuretic, mostly water is the best!
Let me know if the magnesium helps! I use the spray but if the pill works well I might try both.

December 24, 2015

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