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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Crawley, UK

I went shopping this week and after ten minutes in the first shop I felt completely drained and clammy. A relative noticed I'd gone completely white and took me back to the car. The faintness lasted for about 20 minutes and reoccurring the same day. I always faint when giving blood but this was the first time I felt faint for no reason. It's happening more and more now. Does anyone else get this?

December 21, 2015
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Answer Summary

Members shared widespread experiences of fainting spells and dizziness, with many describing similar symptoms of feeling cold, clammy, sweaty,... Read more

Members shared widespread experiences of fainting spells and dizziness, with many describing similar symptoms of feeling cold, clammy, sweaty, and completely drained, often triggered by standing, shopping, or severe fatigue. Several members offered potential explanations and practical advice, including Orthostatic Hypotension, POTS, low blood sugar (suggesting eating small snacks every few hours), and medications like Betahistine for vertigo, though some found limited relief. A recurring theme was the frightening unpredictability of these episodes and the importance of listening to your body's signals to rest before symptoms escalate.

A MyFibroTeam Member

I suffer from drop attacks. I can go very dizzy really quickly for no reason and then just collapse. I also blackout when getting blood taken. I have suffered from these since I was very young and doctors don't know what causes mine. I have had so many tests done but they are always inconclusive. I am on medication to help with the dizziness but for me it doesn't really work. It's called Betahistine and it's for veryigo and balance issues. Hope that helped x

December 22, 2015
A MyFibroTeam Member

That often happens to me but with a hot flash. It also seems to be common for me in stores--grocery, clothing, etc. Get suddenly hot, sweaty, and lightheaded. Also happens randomly after being in a store for a while, sitting at work, etc.

December 22, 2015
A MyFibroTeam Member

Yeah I experience this it's usually when my fatigue is very severe and my body is telling me I really need to have a rest properly and usually after a couple of days or sometimes a good week the symptoms with vanish until the next time I'm struggling with the fatigue badly again.

December 22, 2015
A MyFibroTeam Member

Yes I do I feel really dizzy and sick and feel like I'm going to faint

December 22, 2015
A MyFibroTeam Member

Sounds like Orthostatic Hypotention. Blood pressure drops on standing, standing still a long time or in heat which causes fainting unless you sit down.

December 21, 2015

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