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A MyFibroTeam Member asked a question 💭
Summerville, SC

Can anyone recommend a doctor who either specializes in or is at least knowledgeable on Fibromyalgia. I live in Charleston, SC but am at the point that I would travel if I have to. I am getting desperate!!!

December 21, 2015
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Answer Summary

Members shared recommendations for fibromyalgia specialists in Charleston, SC, with Dr. Neussbaum at Roper and Dr. Carlysle Barfield being... Read more

Members shared recommendations for fibromyalgia specialists in Charleston, SC, with Dr. Neussbaum at Roper and Dr. Carlysle Barfield being mentioned most frequently, though experiences varied, and Dr. Frank Harper in Mt. Pleasant was highly praised but reportedly no longer accepting new fibro patients. Many members expressed deep frustration with the difficulty of finding knowledgeable, compassionate doctors, sharing painful experiences of being dismissed, disbelieved, or told their condition wasn't real, with several noting that even MUSC reportedly doesn't treat fibromyalgia patients at all. A recurring theme was the emotional toll of searching for adequate care, the challenge of finding doctors who both understand the condition and treat patients with dignity, and the vital importance of community members continuing to share information about the rare providers who truly help.

A MyFibroTeam Member

@A MyFibroTeam Member. Dr Neussbaum is the Rheumatologist at Roper that specializes in fibro. I'm going to make an appointment the first of the year. The doctor I work for said he is very nice and very knowledgeable.

December 21, 2015
A MyFibroTeam Member

I did call Dr Harper, can't remember now what exactly they told me but I remember that I was not gonna be able to see him, I called back when you first told me. Damn memory giving me a hard time lately. I know I have called several Dr's that people have told me and I was either told they don't "really" treat fibro, just basic mild cases maybe, or gonna be retiring, I do know that I ended up not able to see them for one reason or another. I've wondered why people have said they see this Dr or that Dr but when I've called I never ended up seeing them. I apologize for my memory right now, tired and been really stressed at home and it's adding to the normal problem remembering stuff. Thanks though ladies, I know I have followed up on the ones who have been recommended .

December 22, 2015
A MyFibroTeam Member

For anyone that is interested - I see a fabulous rheumatologist who is compassionate and knowledgeable and who doesn't give up. His name is Dr. Frank Harper (East Cooper Rheumatology) in Mt. Pleasant. He's WONDERFUL! I've been seeing him for a long time (9+ years) and I owe my life to this man.

December 22, 2015
A MyFibroTeam Member

We may not die from it but some days I feel like I'm going to die. I'm going to find this guy and make an appointment in January when my insurance changes. Too many docs don't understand it or believe it is real. We need to keep sharing info to find the good ones.

December 21, 2015
A MyFibroTeam Member

I do hope you will find someone soon i know how you feel dr neussbaum practice at roper as well all though I may be spelling his name wrong sorry!

December 21, 2015

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