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I am having a really hard time with having to "word search" when I'm talking. I can forget what I'm talking about at anytime, even mid sentence as well as not being able to remember a word that is common place in my "world." To be honest, of all the "crap" we deal with, THIS is what scares me most. I can be talking and suddenly can't remember my best friend's name, or trying to explain that I'm getting treatment for my psoriasis and not be able to remember the word psoriasis. It goes so far as… read more
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Members connected deeply over the frightening and frustrating experience of fibro fog, particularly the struggle to find words mid-sentence,... Read more
Brain fog can be so frustrating and at times just down right irritating. I wish that I could tell you that it's not all that common, but the sad reality is at some point it will affect anyone unfortunate enough to have this body, mind and spirit altering disease will have to live with the variety of side effects that tag along for the invasion. I myself have notebooks, notepads and my newest tool, my dry erase board in order to remember the things that I need, doctors appointments, calls I need to make and as funny as it sounds, even little things like turning off the coffee pot, lights or tv. The trick is finding tools that will work best for you and your individual situation. I would like to tell you the same thing I have told many of those that are also part of my team. You can not allow the fibro and all that comes with it to change who you are, learn to find humor in the little, non-painful side effects to help keep depression at bay, we already have enough to deal with. I used to pride myself on my memory, yet today I carry a notepad pretty much every where I go. Not everyone uses the same tools for daily aides but like everything else in life, different things work for different people and different situations. I've said this many times before, but some things are worth repeating. We have the same disease, the name of the disease is the only thing that we all have in common. Just like finger prints and snow flakes, no 2 cases will ever be the same. Side effects, medications, good days, bad days, symptoms, and the way we deal with the worst joke ever played on the human body.
I have a tendency to ramble on sometimes, some off it's good reading, some of it not, but I will if any of it helps even one person then I can live with that.
Merry Christmas
If you are taking topomax it causes aphasia, the loss of your words. I want to tell you a secret: I am doing a new thing. I am telling my body that it's ok to heal, that my feet have great circulation, my mind is clear, etc. anything I need imptrovement on. And this works.
This happens to me too, especially if I'm in a hurry, stressed, or trying to explain something.
Goodness I could have written this myself. So weird this illness. Hugs. Xx
Hi @A MyFibroTeam Member, sadly memory impairment is one of the major things that get us frustrated. I am currently reading so many things and looking things up that I'm constantly in a state of hyper-awareness of what I'm saying. So if you can take a class or just research things that interest you or just talk to different people it will help. Also, don't think too hard about what you are saying just say what comes into your mind and you will find yourself not worrying too much. Good luck!!
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