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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Garner, NC

Most nights I cant get to sleep and then when I do I wake every 2 hours or less it seems like... do you guys take sleep meds? Do they help! And what kind?

October 15, 2015
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Answer Summary

Members exploring solutions for severe insomnia and disrupted sleep overwhelmingly agreed that restorative sleep is essential for managing... Read more

Members exploring solutions for severe insomnia and disrupted sleep overwhelmingly agreed that restorative sleep is essential for managing their condition, with many noting they cannot function without it. Several members shared the prescription medications that have helped them, including Trazodone, Ambien, Clonazepam, Flexeril, and a newer option called Belsomra, while others mentioned natural approaches like 5-HTP and lifestyle changes such as eliminating caffeine and chocolate. A recurring theme was frustration with medications that stop working over time, the challenge of finding the right treatment, and the shared understanding that untreated sleep issues make all other symptoms unbearable.

A MyFibroTeam Member

I take trazadone, I still wake several times a night, but I go back to sleep and no more mind racing. I do so much better (most of the time) with sleep. The insomnia means the next day is lousy. So hard to work through the pain. I work in social services, Need to stay positive with my clients and productive so I make through the next three years - want that full SSA and retirement.

October 17, 2015
A MyFibroTeam Member

Hi, I think you asked a very important question. Actually without restorative night time sleep we can not recover from Fibro/CFS. There was a sleep study done with normal healthy college students....they were woken up whenever they started into their deep sleep cycles each night. Guess what happened after one week? They developed the same symptoms that we have like fatigue, muscle/body pains, anxiety, depression, stomach problems, headaches...Another study with 50 woman with Fibro showed that each night they had poor sleep, there was an increase in body pain and their regular Fibro symptoms.

Some Fibro/CFS patients are able to sleep with 5-HTP, which is a natural substance, the precursor to serotonin, which along with magnesium, B vitamins, calcium makes serotonin. We need serotonin to fall asleep and stay asleep and it is deleated by stress and poor sleep! There is a protocol for taking 5-HTP. You can read about it in Dr. Rodger Murphrees Book about treating and beating Fibro/CFS. This is also where I learned the info that I just wrote above. I got this book at the local library.

In my case my Dr. treated my sleep problem and all of his patients with a low dose of klonopin. This worked well for me for 15 years. I took .5mg each night. I sleep well with no side effects that I could tell....and slowly together with other things like eliminating gluten, food I was sensitive to, eating organic food, avoiding air pollution my health came back.

However Klonopin is also addictive so I had a difficult episode when I became sensitive to an inactive ingredient in the form that I was taking in the States and the form I took where I used to live in South Korea was different. I tried the 5-HTP.....i couldn't sleep with it, but I continue to take it... up to 300mg anyhow because my nerve tingling and prickling went away and it helped my sleep but not enough... Now I take Trazadone. It is working well and seems to give restorative sleep. I hope after my health condition is higher to try the 5HTP again.

Overall, I would say if there is anything that does need to be treated with natural or medical means for Fibro/CFS it is sleep. There is no way to get better without restorative sleep.

October 16, 2015
A MyFibroTeam Member

Insomnia has to be one of the worst symptoms.Even when i do sleep, I wake up tired;but without sleep (at least some) I can't function at all the next day.I don't care if it takes sleeping pills for the rest of my life.The only chance I have of any kind of normal life, is if I can sleep.Even then, all the other symptoms can, at times, make life unbearable,but without sleep it would be impossible.

October 16, 2015
A MyFibroTeam Member

I refuse to go without sleep now, having a few bouts of insomnia that really wore me down. I have taken Zopiclone in the past which is a prescription sleep aid. Once I started taking Cymbalta I started sleeping regularly. I also take Clonazepam around 8:00 which helps me get to sleep. Without sleep I'm so much worse off.

October 16, 2015 (edited)
A MyFibroTeam Member

Yes I take Abian Zolpidam is the generic. This medication will knock you out. Even if you have to use the restroom in the middle of the night you can still fall back asleep. I do not feel groggy when I wake up neither. Good luck

October 17, 2015

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