@A MyFibroTeam Member. Yes the rheumatologist ruled out everything except I tested positive for HLA-b27 marker. He put me in the FM "trash bin " as I call it because once your there docs don't do anything else to help. I saw a natural path doctor today and she also has FM and was such a good listener. She went through all me meds and told me which ones to keep. Testing blood for hidden food allergies and possible genetic enzyme mutation for mitochondrial defect which could be reason for my chronic fatigue. She also gave me multiple injections of dextrose (D5W) all along my painful trigger points. Will see if that helps. She's really focusing in my gut and thyroid and adrenals. Stay tuned. I see her again on Tuesday.

Mentioned Users

A MyFibro...

That is very informative! Thanks! Have you been to the rheumatologist yet?

Met with GI specialist today regarding IBS. Here is what he told me. IBS, chronic headache , insomnia, fibromyalgia, ,hyperactive bladder, OCD, personality changes are all classified as Hypersympathetic Syndrome. Syndrome causes increases in adrenaline (cholinergic). IBS=abdominal pain mainly in colon. Prescribed Hyosciamine. A little pill to be taken 1-2 tabs every 4 hours as needed for the cramping, gnawing, grating , "electric" pain in lower abdominal/pelvis. Advises following low FODMAP diet. Eliminate Fructose, Lactose, Fructans, Galactans, and Polyols. Need to reduce amount of foods that can ferment in bowels like fruit juices, certain fruits, fructose, honey, lactose like milk from animals, soft cheeses like ricotta, cottage, mascarpone. Galactans like baked beans, chickpeas, kidney beans, lentils. Polyols like apples, apricots, blackberry, nectarines, plums, prune, watermelon, bell pepper, mushroom, sweet corn and all sweetners that end in -ol like sorbitol, mannitol , xylitol.

Avoid stimulating antidepressants like Zoloft and instead use relaxing (anti cholinergic) antidepressants like and cymbalta.

Stop trying to diagnos ourselves. For medical information go to :

www.pubmed.gov

This is a non commercial site. I explained to him that we go to other sites trying to get information because physicians don't give us enough information. We look for alternative medicines in desperation to stop pain and get advice from support groups because we see specialist only 15 minutes at a time every 2-3 months. He said in regards to supplements St John's Wort is only one valid for mood enhancer. SAM-e not proven effective for mood booster. He said "fibro fog " should be called loss of concentration.

After 2 months of loosing work time and floundering around trying to get answers from physicians I finally found one doctor that I feel has a clue to my treatment plan. I will see rheumatologist in a few days. Will post what he says. Hope this helps.

They told me I need to be on a dairy free diet, gluten free as well. I'm like oh my gosh, what is there to eat. But everything I eat doesn't agree with me. I've had endoscopes, colonoscopies and I have the IBS and GERD and none of the medicine is working.

Yes i have gastritis. Gerd ulcerative. Colitis. Its alot of fun eat gluten dairy free sauce free only have chichen Turkey fish. Diet. No spicy. I have bland diet. Mangoes settle. My stomach no seeds,no,popcorn i can tolerate lactaide and soy i dont eat out alot make my own food i bought a food prosser make my own Peanutbutter. Humus,breads not all bread. Carroy banana. Reg bread i buy its extensive. And it has to stay frozen. I bought a freezer for my food it takes up to much room for reg feezer. I dable and try to make my food taste good still,learning