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Fibro
A MyFibroTeam Member asked a question 💭

When you were first diagnosed with fibro what were your feeling? Did it change your out look on life? When I was finally diagnosed even though I knew I had it I was in shock. Mainly because I wasn't to educated on the subject. So I did my research and found comfort in my findings. I was like omg no wonder I feel this or that or no wonder I had such a hard time getting out of bed due to pain. It opened a whole new world for me. Please share your story

posted September 14, 2015
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A MyFibroTeam Member

I myself was very active fit and I loved to socialize. Now I am not fit or as social. It's so much work to get my self ready to go and do things. When I have to wear a normal bra it puts me in a bad mood because it hurts so bad. I wear sports bras, yoga pants, and loose t shirts all the time. I only wear real bras when I have to. I am big chested so it's important that I wear bras. When I did work I was on my feet for 10-12 hours a day. I was barley able to walk to my car after. I would seriously cry because I was in so much pain. Then the next morning getting up to do it all over again and struggling to get out of bed because of the pain.

posted September 15, 2015
A MyFibroTeam Member

I am a very sociable person 95% of the time. However I do not want to burden anyone with my medical problems. I have to explain to others why I do things that I use to do. If you don't have Fibro, you just don't get it. So I don't socialize anymore. I only have a few friends.

posted September 14, 2015
A MyFibroTeam Member

Oh yes and it is a relief to get an answer to years and years of visiting doctor after doctor,

posted September 14, 2015
A MyFibroTeam Member

Still getting my head around it, trying desperately to hang on to a sense of normality i.e work/family life struggling to find a balance and miss having a social life. Even at work I feel like I don't quite fit in any more, no longer able to go out on works do's or join colleagues at the gym after work etc My friends have stopped asking me out because I never go anyway and yet deep down I'm a really sociable person.

posted September 14, 2015
A MyFibroTeam Member

My Mother had these two illness since she was 30 years old. Doctors where skeptical. Told her she was hypochondriac. That it was all in her head. Like 15 years later, they told her, she had CFS. And like 3 years after that, they diagnosed her with Fibromyalgia and many other illness, that come with it, including Breathing Disorders. She passed because of Respiratory Failure, with a Pulmonoligist, by her bedside.

I knew from a young age probably even earlier than I thought. Because in 2001, I got a bicycle, which in all my younger years, I was an enthusiastic of. And at that time, I didn't have a car. But pedaling to my Best Friend's house was a hassle. I ended up giving it to her daughter.

I had it, but tried as hard as I could to keep on living MY WAY.

Got diagnosed in 2012, after a car accident in which the person, was just ignorant, just flowing into traffic looking ONE WAY, TO HER RIGHT. That's when I got an immense FLARE UP, THAT NEVER SUBSIDED.

I have done my research on my Conditions, Medications & Healthcare Providers. I have everything printed & in envelopes. And when I have an appointment, I take what pertinant.

LET THE PROVIDER KNOW, I'VE DONE MY HOMEWORK, EVEN ON HIM.

posted September 14, 2015

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