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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Arlington, MN

I'm not sure how this works to post a question.. I would just like to hear others opinions.. my husband, myself and our son were going out for breakfast when I was explaining to him in the best way I could, how debilitating this fatigue really is, and he told me maybe it is between my ears, meaning all in my head. I started to cry because I so badly want to be understood/taken seriously. then I got told it was a joke and since I was crying, maybe we should just go home because now the whole day… read more

September 7, 2015
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Answer Summary

Members rallied around someone questioning whether her husband's dismissive comments about fibromyalgia fatigue constituted emotional abuse,... Read more

Members rallied around someone questioning whether her husband's dismissive comments about fibromyalgia fatigue constituted emotional abuse, with many sharing their own painful experiences of being told their symptoms were all in their heads by doctors, family members, and even healthcare providers like massage therapists. Several members offered practical advice, including attending support group meetings together, sharing educational resources like printable pamphlets from the Arthritis Society, and finding calm moments to explain the difference between normal tiredness and the debilitating exhaustion of fibromyalgia without becoming emotional. A recurring theme was the profound isolation of living with an invisible illness that others cannot see or understand, met with fierce validation that the pain is real, encouragement to stay strong through visualization and self-affirmations, and deep compassion for those navigating pregnancy, financial stress, and unsupportive relationships while managing this misunderstood condition.

A MyFibroTeam Member

thank you, everyone, for all your wonderful, supportive comments! it sure does mean a great deal! :) I'm two weeks away from delivering my second child, so I'm counting down the daystto start medication again! that will also help tremendously!

September 7, 2015
A MyFibroTeam Member

My own sister told me that my fibromyalgia is in my head. Lol..I wish it was..maybe then I could take something that would cure it. It is not on your head. Nobody understands the fatigue that comes with this. It is not your run of the mill tiredness, and for me it is in the backgroud no matter what I do

September 8, 2015
A MyFibroTeam Member

Praying for you sweetheart, those that we love, unless they experience this themselves, have very little idea what we deal with or how we suffer. The way I handle the nay sayers is with a little chant I say to myself to help my confidence and self esteem. "I know I am strong, I know I am able, I Know KNOW this is not in my head." It helps me slap a smile on my face and trudge forward; you may also try visualization, like when you are sidelined what you do to make yourself feel better, or visualizing your best day, and then visualizing a lot of best days. Take Care Dear Friend, this is the most supportive place you will find not only for Fibro, but for any support needed.Blessings

September 7, 2015
A MyFibroTeam Member

People think they know what you mean when you say you are fatigued but this is based on their own feelings of healthy tiredness which in no way equates with the excruciating feeling of your body at the stage where you either ly down or fall down and the pain and at times numbness that accompany this your husband like others can't understand this pick a time when you thimk you can talk to him without crying be strong and try to explain how youfeel physically and that no one is to blame good luck take care of you x

September 7, 2015
A MyFibroTeam Member

I think because it is so misunderstood disease.. No test to prove it. But if you look at your history you p probably had a symptom or two. When mine flared it was soon after surgery. Coincidence or did the surgery flare it. There is not enough evidence either way. I can tell you it effects so much of my life. I have been a stay at home mom for 21 yrs. So I can't get financial help. So I feel like a burden on hubby. It causes slot of stress. I've cried many tears. You younger folks I don't know how you start a family. Hats off to you. Jamie maybe a t therapist could help you.

September 7, 2015

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