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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Raleigh, NC

So when do you finally accept the diagnosis that you have fibromyalgia. I am having a VERY hard time accepting it, and it is not because I am stubborn I just do not feel that I have it. I have some pain and if I had to rate I it would be between a 2 and a 4, but my problems is muscles, ugh I hate to even say the word muscle right now. For example, my legs when I walk my muscles ache and immediately feel fatigued even though for the past two months I have walked a mile a day if not two. My arms… read more

August 11, 2015
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Answer Summary

Members deeply connected over the struggle to accept a fibromyalgia diagnosis, with many describing years of doubt stemming from normal blood... Read more

Members deeply connected over the struggle to accept a fibromyalgia diagnosis, with many describing years of doubt stemming from normal blood work, dismissive doctors, and symptoms that don't always match the expected pain levels, yet profoundly impact daily functioning like doing hair, walking, or being intimate with a partner. Several members shared practical wisdom learned over time, including the importance of pacing yourself without guilt, listening to your body's limits, finding a doctor who truly listens, and considering overlapping conditions like myofascial pain syndrome or sleep apnea that may complicate the picture. A recurring theme was the grief of losing your former self and the isolation of living with invisible chronic pain, met with fierce reassurance that fibromyalgia is real, you are not alone, and self-advocacy and self-compassion are essential tools for navigating life with this condition.

A MyFibroTeam Member

It has been 10 years for me and I still have a hard time accepting this. I always think something else is wrong and they just haven't found it.

August 11, 2015
A MyFibroTeam Member

To all who need .I want to give all of u who are still able to work a standing ovation. I don't k ow how u do it.Just to spend a day with my1 and 21/2 year old grandkids wears me completly out .All energy and strength has left this buildingbuilding not to mention my emotional strength so Here's to u all!

August 13, 2015
A MyFibroTeam Member

Seeing all of your comments we seem to echo one another. I'm not happy by any means with this crap. I'm tired of my mind saying I can do all these things and my body puts me back in check real quick.
It's not TMI about you & your husband. I have the same issues. I know some say fibro is a catch all diagnosis, but it is a very real condition/disease. I do a lot of research and right now things are leading to neurological pathways. I don't accept what I have because I won't give in - my husband says it's one time being stubborn has helped me. (What does he know😏). But I do try to make the best of what I have, I'm glad I'm not my aunt, and there are much worse things (even though it sure as hell doesn't feel like it!)
I just have to try to be as positive as I can because the alternative sucks

August 11, 2015
A MyFibroTeam Member

I'm not sure you ever fully accept the fibro diagnosis. My hardest battle is I am only 28 and I am going on 9 years since my first diagnosis. I completely understand where you are coming from with the exhausted limbs, I couldn't tie my hair back without excruciating pain. Thankfully I found a great doctor that was willing to try any medication I researched. I went through 7 years of feeling like a guinea pig before I was put on Cymbalta, indomethycin and oxycocet for the really bad days. I also found beginners yoga was very helpful but I had to fight through the first week. I also had to modify my lifestyle, I no longer could spend a full day doing activities without paying for it the next day. My best advice talk to your doctor and listen to your body. I believe you can find happiness again despite the fibro.
Gentle hugz, hope the best to you.

August 11, 2015
A MyFibroTeam Member

I was told fibro since 1996, still have a hard time with the diagnosis. One day my pcp told me I have to except it and he has alot of freinds who have it, its real he told me, that's when I said okay maybe I do have it. I have the fatigue in my legs arms and everywhere always feel like I worked out. When I get up from sitting or laying down it takes awhile to move everything is so stiff. I believe we are in denial with the diagnosis because they used to give you fibro when they didn't know what was wrong with you, but know they know it's real. Have you read about fibro it can be really bad for some people. Non of the meds helped me either. Hope you get some relief.

October 8, 2015

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