Janlee61, I have often feel this way. I shy away from crowds for this reason. My older sister just doesn't understand. She wanted to take me to Las Vegas for my birthday. I couldn't go, if the crowds wasn't even a good fit. Riding in a car is very painful. I wear an arm brace, a sling & a foam pillow. This is to prevent any jarring of my arms. Some days I feel like I've been a war.

Me, too. I take breaks to wash my hair (like 5). I can only put away maybe 2 dishes before my arms are tired. I can't do anything. I have severe muscle fatigue and weakness. Stairs are nearly impossible. Repetitive motion is the worst.

Unfortunately I feel the same, if I have an itch it is to painful too cratch

Does drinking alcohol make symptoms worse???

Mine, too.