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A MyFibroTeam Member asked a question 💭
East Windsor, CT

Just curious as to what my fibro friends do for fun. Im single, and between the pain, and anxiety levels I have im having a tough time. I read, and do cross words. I can't stand on my legs for a long time without being in pain.

July 17, 2015
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Answer Summary

Members shared how fibromyalgia has reshaped their social lives and hobbies, with many describing a shift from full days of activity to... Read more

Members shared how fibromyalgia has reshaped their social lives and hobbies, with many describing a shift from full days of activity to shorter intervals of reading, crafting, quilting, gardening, and watching TV, as even simple tasks like holding a book or standing can quickly become exhausting. Several members found creative ways to stay engaged, including adult coloring books, electric bikes for riding, online gaming, photography, and swimming, though many noted the need for rest afterward and the challenge of timing activities around energy levels that fade by evening. A recurring theme was the loneliness and isolation that comes with fibromyalgia, as longtime friendships drift when evening plans no longer work, support groups don't always fit, and the unpredictable nature of pain makes it hard to commit to anything beyond the comfort of home.

A MyFibroTeam Member

I do alot of home activities of course: gaming online, artsy stuff, reading, music, gardening. I also cook alot and built an electric bike so I can go bike riding . I enjoy crafting and photography. And chatting on message boards.

July 21, 2015
A MyFibroTeam Member

The things I do for fun is read and watch tv. I can't stand for long either. U try to do as much as u can without over doing it. U also need to take ur meds at the same time each day. This helps u to stay on top of the pain. I have a habit of over doing it as well. I'm picky about everything staying nice and clean but sometimes I just have to stop and remember it will still b there waiting for you to do it later. Listen to ur body.

July 18, 2015
A MyFibroTeam Member

Swimming is my exercise but it is hard to find a place to go half hour in pool any longer and my legs are like jelly when I get out . Also need a nap after

July 18, 2015
A MyFibroTeam Member

I have a few neighbors who stop by, but like you I'm not to energetic. I wake up early and do me errands by that time my legs have had enough. I am just having a rough coupler weeks. My granddaughter wanted me to meet her last night 7:30 to take a lilittle walk, but im just so exhausted by that time. I have the same problem with reading, muscles behind the eyes get tired. I know it is what it is, but I struggle with it. Oh wellthanks yyour response, It helps to know others have the same issues.

July 18, 2015
A MyFibroTeam Member

I recently discovered adult coloring books and I'm really enjoying them , helps relieve my stress and take my mind off the pain , I love watching the pages come to life , it makes me feel like I accomplished something. ☺

March 14, 2016

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