I have an update to share with all of you. I had a talk with hubby yesterday. I told him that I didn't feel like I could talk about my fibro symptoms without following it up with "or it could be because of this". He was really great. He told me he totally believes it and believes I've been living with it for a really long time, and is happy that now there is an actual diagnosis. He then asked me to tell him what he can do to make it easier on me. I told him there is no one answer because it's not a consistent thing, and everyday is different, but I'm doing my best to get better at asking for help when it comes to things that are physically exhausting for me. I don't really know what else I can tell him. It's just a day by day thing in my opinion. Anyways, I just wanted to share that. It was a good convo. :)

i take my hubby to all my appointments. my husband is very active in my treatments. he is absolutely wonderful but i know im very lucky. not many guys want to understand. ur hubby may not know what to do with it all so feels its better to ignore n pretend u r fine.

Don't let him sleep for five nights in a row. Keep him awake, no coffee or energy drinks either. Let him try to work like that for the week. Stick 50 clothespins on his body and tell him to spend the weekend like that, and not take them off. If they come off, put them back on. Then tell him to go do the dishes, laundry, mopping, scrubbing the bathroom, taking care of the kids, run errands, cooking, shopping etc. When he whines, tell him, "I don't ever get a good nights sleep, and I never get to take the pain away. Now imagine living like this, and feeling like you have the flu on top of everything else. Do you remember how much your whole body hurt last time you had the flu? Every day is like trying to run a marathon when you have the flu." He will understand rather quickly. They won't be able to live in denial if you make it real for them, and show them what it really feels like, and put it into terms they can relate to.

I have recently read books on living with a Narcissistic Personality. I believe many of us do have this trait in our partners and we are weary of trying to matter. I say, "I am sorry...." so much while this pain and disease is not my fault. To help you, I had my husband go to all of my neurologist, rheumatologist, and family doctor appointments for a year or more. It helped him hear from a professional how disabled I really am...Living with. fibromyalgia.

What has happened to the meaning of marriage vows? It's sad that so many of us end up with spouses that don't take the " In sickness" and in health part very seriously. The health part of the marriage seems to be accepted, but they decide to bail when you get sick? I believe it's said first in the vows for a reason.