Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Goderich, ON

Have others found out what their vitamin D levels are like? I know I had mine checked and it was very low. I read people with fibro tend to have low level

June 26, 2015
 · 
Be the first to react

Answer Summary

Members overwhelmingly confirmed that low vitamin D levels are common with fibromyalgia, with many sharing their experiences of levels so... Read more

Members overwhelmingly confirmed that low vitamin D levels are common with fibromyalgia, with many sharing their experiences of levels so depleted that doctors prescribed high-dose supplementation ranging from 5,000 units daily to 50,000 units weekly or monthly. Several members offered practical strategies that helped raise their levels, including taking vitamin D3 with vitamin K for better absorption, using liquid supplements instead of pills, ensuring adequate sun exposure in warmer months, and understanding that calcium requires vitamin D to be properly absorbed. A recurring theme was the frustration of persistently low levels despite treatment, balanced by encouragement to keep trying different approaches and working closely with doctors to find what works best for each individual body.

A MyFibroTeam Member

Mine were fine but doc recommended 2000 summer and 4000 winter.

July 13, 2017
A MyFibroTeam Member

take D-3 everyday and a B12 to help it absorb it I now keep my levels at a low but ok level (barely)

July 1, 2015
A MyFibroTeam Member

Mine have always been low - 14 in 2008. I have been on 50000 unit Vit D protocol on a regular basis because my body will not absorb it. I finally got my level to a 27 last fall - highest it has ever been. I found using liquid supplements work better which is how I managed to get my level up along with the script.

June 27, 2015
A MyFibroTeam Member

I have had low D for years. I also have too much calcium, so no extra vitamin! Low D is often caused by lack of sun also. I have to spend more time in the sun! Hope you work it out!

June 27, 2015
A MyFibroTeam Member

Yes I have been checking mine for the past six months and they are very low. Started out on 50,000 units once a week by mouth and I have now moved on too injection. Waiting to see if the injections work.

June 27, 2015

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Belgrade, MT

A MyFibroTeam Member asked a question 💭
Meadville, PA

A MyFibroTeam Member asked a question 💭
Foster, RI