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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Bourbon, IN

At my last physical therapy appointment they said I've lost over half my muscle mass in my legs In a year. Any one else have muscle loss / weakness ?

May 14, 2015
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Answer Summary

Members responded to concerns about significant leg muscle loss by sharing their own experiences with muscle weakness, wasting, and the... Read more

Members responded to concerns about significant leg muscle loss by sharing their own experiences with muscle weakness, wasting, and the debilitating heaviness that makes even short distances feel impossible to walk. Several members described strategies that have provided some relief, including gentle walking when possible, weighted heat therapy, meditation and prayer, home health aides for daily tasks, and learning to pace activity carefully to avoid post-exertion crashes. A recurring theme was the isolating fear of progressive weakness and losing independence, balanced by the comfort of knowing others truly understand these struggles and that muscle loss is a real, recognized part of living with fibromyalgia and chronic fatigue.

A MyFibroTeam Member

Yep, I've been told I have muscle wasting disease! Thinking that it's from nearly 30years of CFS and 4 years of Fibro. There's Also the arthritis, and post exercise exhaustion, though finding short walks, meditation, and prayer. Helps a lot

May 15, 2015
A MyFibroTeam Member

I was told that I have "muscle wasting disease" in 2013 without explanation.

In Jan 2014 I got up from sitting and my leg collapsed (wasn't numb or anything) so I broke my foot/ankle on nothing but a rug. It must be the fibro-"myalgia".

In 2015 another "myalgia" came in my elbow and wrist while working, and had to wear braces because the suspected Ulnar nerve neuropathy was supposedly proven to be not so...It must be the Fibro-"myalgia"

I am now unemployed.

March 20, 2016
A MyFibroTeam Member

Thanks All. After reading your responses, I don't feel like I'm crazy or like I'm the "Lone Ranger" out here with leg issues.

May 20, 2015
A MyFibroTeam Member

my legs also feel as though they weigh 500 lb and I get this feeling like they are strained somehow, loke they are being pulled. I have the feeling that all of these things, taken into consideration that we are all individuals, add up to a syndrome that is just not being recognized. Hormonal perhaps. not sure. best wishes for all to have a good week.

May 19, 2015
A MyFibroTeam Member

I find when I go to therapy I hurt more and I don't like anybody touching me it's just like my clothes they hurt too

January 28, 2016

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