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A MyFibroTeam Member asked a question πŸ’­
Ithaca, NY

I am not sure what to think about my neurologist appointment yesterday, I am now going to have a brain MRI and Nerve conduction study due to having numbness in my extremities trying to rule out MS. Do any of you have the same kind of symptoms?

April 23, 2015
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Answer Summary

Members connected over experiences with numbness in their extremities, sharing diagnoses ranging from carpal tunnel and Raynaud's to small... Read more

Members connected over experiences with numbness in their extremities, sharing diagnoses ranging from carpal tunnel and Raynaud's to small fiber neuropathy, with many having undergone nerve conduction studies and brain scans that ruled out MS. Several members described practical management strategies including physical therapy for trigger points, dry needling procedures, and finding rheumatologists who specialize in fibromyalgia-related nerve symptoms, with one member crediting a skin biopsy as the key test that finally identified their small fiber neuropathy after years of uncertainty. A recurring theme was the frustration of navigating symptoms like painful skin splits, facial numbness, and leg weakness while searching for answers from neurologists, met with mutual understanding and encouragement from others living with similar experiences.

A MyFibroTeam Member

I have had several EMG's and brain scans over the years for numbness in my extremities, especially the outer sides of my fingers and toes, but my Neurologist has come up with Carpel Tunnel on my hands and Reynauds for my feet. Still have the numbness though. :-(

April 23, 2015
A MyFibroTeam Member

Yes I do too and MS was ruled out too without the necessary MRI tests etc

March 2, 2016
A MyFibroTeam Member

I am suffering from numb toes, and wanted to know if anyone else has experienced it. I actually poked it with a pin today and there was no feeling whatsoever. I am not sure if that is a very bad thing...any ideas? Sho far, my hands only go numb a couple times a day when I have my arms at any places above hip height. Once I put them back down, the feeling returns fairly quickly. But this is new and happens several times a day. This is such a frustrating disease with so many symptoms that range so greatly from one person to the next and from one part of the body to the next. My neurologist takes months to get into and told me I am fine. He was literally no help whatsoever. I will find a new one that had awesome references.
Well, I hope you have a wonderful Wednesday and that you feel all parts of your body that are important! πŸ˜‰πŸ‘

January 5, 2016
A MyFibroTeam Member

I had the same tests and came back negative. Finally a rheumatologist called for a skin biopsy and that showed small fiber neuropathy. That caused my numbness, pins and needles, redness, inflammation, & burning skin pain. I know I'm 2 years late but better late than never

March 25, 2017
A MyFibroTeam Member

Yes, frequently!

January 29, 2016

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