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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Colorado Springs, CO

I find that I'm becoming very heat intolerant. Almost to the point of panic. When my mother took all of us on a cruise to Mexico I got off the boat with everyone else in Puerta Vuerta and within 20 had to run into the ocean. It was scary not being able to cool off in my own body. It was oppressive. No one else did that, so I felt dumb doing that. Once it gets hot out I have to be in an air conditioned environment ot I'm not comfortable....:( I'd really like to know if anyone else has this… read more

March 17, 2015
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Answer Summary

Members connected deeply over the conversation about heat intolerance, with many sharing that they experience intense overheating, panic-like... Read more

Members connected deeply over the conversation about heat intolerance, with many sharing that they experience intense overheating, panic-like sensations, and physical symptoms like tremors, breathing difficulties, nausea, and debilitating headaches when exposed to warmth. Several members described practical coping strategies, including keeping air conditioning at very low temperatures year-round, using cooling gel patches designed for fevers, avoiding hot climates and summer activities, and seeking out air-conditioned spaces when symptoms flare. A recurring theme was the emotional relief of discovering they were not alone in this struggle, with many expressing gratitude for finally understanding that their heat sensitivity is a real and shared aspect of living with fibromyalgia rather than something to feel embarrassed about.

A MyFibroTeam Member

DeeDee who is your doctor? Have you had a brain or spinal MRI? I have brain lesions but no demylenation. MS will knock some people down in a heartbeat and others have fibromyalgia-like symptoms for many years. Before I was on this site I was on the MyMSTeam site for a year. I went on as a "limbo lander" with MS suspected. When I found I didn't have it, I had made so many friends I am still on there. I personally think no one should be given a fibromyalgia diagnosis without ruling out MS. Due to the prevalence of pesticides in our foods and GMO, these diseases are increasing exponentially.

March 19, 2015
A MyFibroTeam Member

I believe Ill be one of those people that spontaneously combusts! JK like in those crime shows where they come in and its just a pile of ashes with shoes!!!Lol, it is scary though because you begin to look for places where you can cool down like airconditioned stores etc....

March 18, 2015
A MyFibroTeam Member

Yes, my kids complain all the time how cold it is in the house. I sometimes have the a/c on in the winter. Even when it is cold in my house I will start sweating. Funny thing is though, I do better in the spring/summer than the fall/winter.

March 17, 2015
A MyFibroTeam Member

You Guys have no idea what reading your heat problems has done for me. I have been suffering for almost 34 years with this and doctors just could not help me. I am almost crying with relief that I am not a weirdo!!!

September 14, 2015
A MyFibroTeam Member

I cannot tolerate the heat. I literally almost had a heat stroke one summer and this was before I got fibro. So now with fibro it does not take much for me to start getting sick. I freeze my poor husband out of the house. He has no problem with heat never has. But the winter is bad too when its extremely cold. If we are going from a restaurant to the car just that short few minutes of cold brings on a horrible flare.

June 6, 2015

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