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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Nashville, TN
March 14, 2015
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Answer Summary

Members overwhelmingly confirmed having low vitamin D levels and shared the wide range of daily supplements they take, from 1,000 IU... Read more

Members overwhelmingly confirmed having low vitamin D levels and shared the wide range of daily supplements they take, from 1,000 IU maintenance doses to prescribed weekly 50,000 IU treatments for severe deficiency. Several members described meaningful improvements after supplementation, including reduced pain levels, better fatigue management, and overall symptom relief, though others noted it did not significantly impact their fibromyalgia. A recurring theme was the strong connection between fibromyalgia and vitamin D deficiency, with many emphasizing the importance of getting levels tested and finding the right dosage, particularly for those living in areas with limited sunlight.

A MyFibroTeam Member

@A MyFibroTeam Member I was really low. Put on 50,000 IUs once a week for several months with a little increase. I am now on 5,000 IUs a day. I also try to get in the sun for 30-40 mins a day that is suppose to be the best way to increase your Vitamin D. I also realized that the pain was lessened since I took it. Vit D can cause a great deal of pain.

April 9, 2015
A MyFibroTeam Member

Hi @A MyFibroTeam Member have you tried using a sad lamp? They are supposed to give you vit d but also help with low mood during the winter months x

March 18, 2015
A MyFibroTeam Member

ToniEvans - My doctor, rheumatologist and I've read that Vit D deficiency is very common in people with fibro. It is worth getting your level tested.

March 16, 2015
A MyFibroTeam Member

@A MyFibroTeam Member -- It's interesting that your doctor says that. My rheumatologist says just the opposite. I wonder if that would make it a regional thing or something like that??

March 16, 2015
A MyFibroTeam Member

I take about 1700mg of vitamin D every day. When I was first diagnosed they tested my level and it was almost nonexistent. I haven't noticed any difference in it affecting my pain levels.

March 15, 2015

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