Fibromyalgia

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Any specific I should be asking Doctor?

Any specific I should be asking Doctor?

I see my Rheumatologist on Feb, 1. I feel like I should have some questions to ask her but I don't know what to ask. I am on prednisone at the moment but will be asked to be taken off of that... Too many side effects and I can't deal with it. Plus not good for long term.
I'm sorry if this is a little vague, I feel so lost though. Any information or questions will be greatly appreciated.

A MyFibroTeam Member said:

Thanks! When I started prednisone she told me how to taper down, and I'm at 5mg a day right now.

posted about 6 hours ago

Shin pain and lumps

Shin pain and lumps

I have pain that comes from my knees down to my feet. I also feel bumps and pain on my shins. Does anybody has this?

A MyFibroTeam Member said:

A little normally with itching

posted about 10 hours ago

What are your "I WONDER'S" here are mine

What are your "I WONDER'S" here are mine

I have a lot of "i wonder" with this disease,, like,, i wonder if that fact that i was prescribed anti depressents a couple times in my life when times were tough and just stopped them cold turkey without Doctor supervision has anything to do with this pain.

I wonder if all the anti biotics i have had to take throughout the years did something to all the good bacteria in my body be it gut ot elsewhere that now my body doesnt do what it should

I wonder if the cream the… read more

A MyFibroTeam Member said:

Hi. I agree whole heartedly with what you have just written, but most - read all - Drs I have been to just close their ears when they hear fibromyalgia.… read more

posted about 2 hours ago

Nerve pain throat

Nerve pain throat

Does anyone else besides myself get pains in the back of the throat that can be best be described as nerve pain? It doesnt hurt to swallow, but will hurt at different times throughout the day.

A MyFibroTeam Member said:

Yep--usually on my right side and it hurts right up into my ear. No pain to swallow and eventually goes away on it's own--no explaination

posted about 23 hours ago

As if our anxiety isnt enough,, how do you deal with a best friend who's leaning on you for emotional support ?

As if our anxiety isnt enough,, how do you deal with a best friend who's leaning on you for emotional support ?

She asks if she can come over because she doesnt want to go home ,,, i know she's going to come over a ball of anxiety and it causes me anxiety just knowing shes comming over which does not help me at all,, she is my very best friend,, but she will just text and ask if she can come over ,, i cant say no ,, but i need to know how to shield myself from taking on her stress or being stressed out by her visit… read more

A MyFibroTeam Member said:

all true thank you all,,, just seems like anxiety rules this disease or vice versa,, all in all it was a nice visit even it un expected/scheduled,, i… read more

posted 1 day ago

Photophobia

Photophobia

Do bright lights from the sun or screens bother your eyes and your head?

A MyFibroTeam Member said:

Defintely. My living room has blinds closed and room darkening curtains closed all the time. I always have sunglasses and I will wear them inside if I… read more

posted 1 day ago

Do you startle easily?

Do you startle easily?

I can be asleep in my chair, and a sudden noise can make me jump and I even cry out.. weird..huh?

A MyFibroTeam Member said:

Sometimes i take a muscle relaxer to help me sleep.

posted 1 day ago

January 20th, Blue Monday depression

January 20th, Blue Monday depression

There's been an intense surge of people posting about depression in the last several weeks. I would like to point to an article that was written about this particular day - January 20th as being a peak for depressive symptoms. It's not only people with fibromyalgia but I think it certainly hits our team very hard.

It might help to know that we're not alone and we need to reach out and support each other - and ourselves.

Has anyone read this article or felt more depressed… read more

A MyFibroTeam Member said:

Tai Chi sounds great @A MyFibroTeam Member Is the class far from where you live? I react so poorly to the cold that I reduce my normal exercise at the… read more

edited, originally posted 1 day ago

Having doubts need advice

Having doubts need advice

Hello i have been given a date for gastric bypass surgery but i have Raynauds diseases, sleep apnea, fibromyalgia, high cholesterol, high blood pressure, type 2 diabetes and fatty liver disease none alcohol related have anyone been through this surgery with similar problems i have or am a unicorn ?

A MyFibroTeam Member said:

They should've been aware of all that b4 scheduling your surgery. That is proly part of reason for surgery to get you better and off those meds. Things… read more

posted 3 days ago

Severe depression

Severe depression

Diagnosed 10 years ago. Family complains about everything i do/dont do, they dont understand me and wont educate themselves! (Too painful) im severly depressed, where can i turn? I cant take another day feeling so horrible about myself which in turn you know that sets off a flare! Any of you experience this where do i turn? Thanks!

A MyFibroTeam Member said:

Hi! It is a real shame when meds that did some good seem to lose their effectiveness, but take heart if you can, and remember that most of us are in the… read more

posted about 3 hours ago
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