Hi fellow fibro warriors. Lately I've been feeling like my symptoms are worsening over the years. Pain is getting worse as is forgetfulness and anxiety. I'm afraid to drive or go anywhere by myself. Seems like I'm having less and less "good days" and sliding down fast. Not sure if this is a real thing or just my imagination.
Not your imagination at all. This disease more often than not continues to progress. Maybe we should all go after big pharma. They’re making way too much money to even look for cures, just like… read more
I’m wondering if it’s just me, but I’m definitely getting worse. Year on year the pain, fatigue and quality of life seems to be getting worse. I know the fatigue is also linked to Rheumatoid Arthritis and low thyroid. But just feel too exhausted to keep fighting it. Does anyone else feel like that or is it just me? Lizzy
Ugh! Yeah I feel my symptoms getting worse but I'm also developing new ones. So VERY frustrating. Yet they say it's not a progressive disease! 🙄
It's not a stupid question but a very relevant one. Despite Medical Experts stating otherwise. I personally find it does worsen with age. My mobility seems to decrease more and more as I get older… read more
I suffer with fatigue more than pain, or maybe I manage/cope with the pain better than I cope with the fatigue.
I have well-meaning friends who say things like “how’re you sleeping” or “have you tried lavender?”... etc and I get so frustrated that people don’t understand, it’s irrelivant how much sleep I’ve had, it does not refresh me and I’m still fatigued, day in, day out, no matter what I do or don’t do.
One description I’ve come up with is “it’s so tiring to move and my body feels so… read more
The best way I describe chronic fatigue is I feel like I was just administered anesthesia! I have fibro also so I'm in pain 24/7. Sometimes I can push through the pain but I have not found anything to… read more
In the hopes of pinpointing the onset of a flare up-being new to this and all- what little clues have you learned to spot that warns you a flare up is coming? Whats the longest youve experienced?
I usually have scalp pain
Does your brain fog and memory loss get worse under stress or is it consistent?
Couldn't agree more with Suzie. Because we tend to get isolated and because of the possible inflammation in our CNS because of Fibromyalgia, we need to be very aware of brain health. Part of that is… read more
I agree, I just believe my fibro caused me to have a very different reaction. My Sister had to have them because she works in healthcare and my Momma (may she rest in peace) was also almost 90 and… read more
I have been hearing people talk about a lack of oxygen to the brain being a cause of inflammation, etc. I've seen where some say hyperbaric oxygen can cure fibromyalgia. So as I looked for ways to increase oxygen to the brain (exercise is certainly one), I find where low blood pressure will decrease oxygen to the brain. Wow, I have low blood pressure. The other night it was 81/60, though it is usually 90/70. Do any of you have consistently low blood pressure? Cause maybe this is one path to… read more
I've thought about trying Hyperbaric Chamber but insurance won't cover it arghhhh
Hi Everyone,
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
Hi everyone. I've just been reading all these comments. Wow I can relate to everyone of them. It's 4am here and I am up with jaw pain. I thought it's my teeth!! But now I'm thinking it's this… read more
I have been diagnosed with fibro, me/CFS and POTS, with me/CFS being the worst. I still manage to somehow function and raise my children, though extremely limited. I have had neighbors and family say that getting old is hard business (mind you I'm 30). I sometimes stop and wonder if really I could just "snap" out of this and maybe it is a mental issue. I know what I'm experiencing is real. And I most of the time am emotionally resilient. But sometimes when I am pacing I wonder, maybe I'm setting… read more
21 years ago I feel, I injured my leg after I had surgery on my knee I was diagnosed with RSD/CRPS it is also a nerve disorder but the burning pain is like I but my foot in fire it was very bad I’m on… read more