Fibromyalgia

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Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

tags: describe flare symptoms

posted about 2 years ago by A MyFibroTeam User
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That sums it up. Pain one day pain the next.
Cant think or remember. Feels like someones crushing my muscles.

posted 9 months ago

Finally, a solution to my pants!!! :) LOL

Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything… read more

tags: uncomfortable clothing maternity pants

posted almost 3 years ago by A MyFibroTeam User
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Love my leggings and now that they've come back in to fashion you can find some great looking ones!

posted about 1 year ago

How to help a friend with chronic illness

There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):

~ Don’t be afraid to hug her gently, but please no bear hugs.
~… read more

posted 4 months ago by A MyFibroTeam User

Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

tags: full time employment working

posted almost 3 years ago by A MyFibroTeam User
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Yep, I quit and started my own business from home--scary to start out with but best thing I've ever done.

posted 9 months ago

Warning-Scam

Hi folks! Wanted to share my experiences with a company named Wellness Product. They offer a free trial of CBD tinctures and capsules. Cancelled my subscription in time, and found out that they had taken$79.95 out of my account. When I called them to complain, they told me that the only way I could get a full refund, I would have to ship back the unopened products, for a shipping total of $11.90. They told me that the best they could do was send a 50% refund. Guess it was free to look at the bottles… read more

tags: scams

posted 8 months ago by A MyFibroTeam User
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I am sorry to hear that. I pray that you are successful with your case. I experienced that this summer and I had to go through my credit union.

posted 6 months ago

Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

tags: stomach digestive problems infections inflammation gall bladder disease jaundice liver disorders cervical dysplasia heart ailments skin ulcers colds gastrointestinal spasms inflammatory disease of the gastrointestinal tract coughs & colds fevers

posted over 2 years ago by A MyFibroTeam User
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Loving the Mindwise and the Ningxia Red and Ningxia Nitro. They work so well together for clarity, energy and mental acuity! I would not go without them… read more

posted 11 months ago

Great Fibro resource

Hi friends,

http://clairescomfycorner.com

Just discovered this website that has some great info for any newbies to fibro or just anyone looking to find out if what they are going through is the same as others.
Nice recipes on here too.
Hope this helps some of you. Hugs. Heather

posted 4 months ago by A MyFibroTeam User
view all answers (34)

You're welcome @A MyFibroTeam User
Hope you are having a low pain day. Gentle hugs to you.

posted 4 months ago

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

tags: insensitive remarks

posted over 2 years ago by A MyFibroTeam User
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@A MyFibroTeam User I love the response i think you might be getting it. Very clever and fun to read.

posted over 1 year ago

Apps for Coping Strategies

I was given some great resources today at a meeting I went to.
One of those resources was some great apps.
Below are a list of these. Hopefully you can find one or more of these that can help you in your daily life.

Mind Box
My Calm Beat
What's up
Box Breathing
Headspace
Insight Timer
The Sleep School

posted 4 months ago by A MyFibroTeam User
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Some of these you mentioned like the breathing that is part of physical therapy learn to relax it's all about your breathing that causes the pain in… read more

posted 3 months ago

Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

tags: Can't sleep ay night Neuroleptic sleep

posted about 2 years ago by A MyFibroTeam User
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Hi there, no I only take three at night. My Neurologist put me on them. They have still not been able to control my epilepsy.

posted 6 months ago
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