Fibromyalgia

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Describe what a Flare Up is to you ?

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

A MyFibroTeam Member said:

@A MyFibroTeam Member for sure since 1998!!

posted 17 days ago

Finally, a solution to my pants!!! :) LOL

Finally, a solution to my pants!!! :) LOL

Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything… read more

A MyFibroTeam Member said:

I love it! I've actually thought of trying on matenity clothes while passing the clothing area in stores, but you just gave me the courage to go for it!… read more

posted 4 months ago

Full time employment and fibro

Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

@A MyFibroTeam Member 5 yrs is crazy, im praying for a year before we will be in a van down by the river I have a guy who worked for social security… read more

posted 16 days ago

How to help a friend with chronic illness

How to help a friend with chronic illness

There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):

~ Don’t be afraid to hug her gently, but please no bear hugs.
~… read more

A MyFibroTeam Member said:

You're very welcome Mary
Gentle hugs

@A MyFibroTeam Member

posted 4 months ago

Does anyone get exhausted and depressed after a simple outing?

Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

I have the same thing. The max I can go out is 2-3 hrs. and that is on a good day. Some days (most) by 1-2 in the afternoon I am finished with any type… read more

posted 13 days ago
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