We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more
@A MyFibroTeam Member when I get a flare it is pretty much like yours. Everything hurts some places like my hips can lay me out for weeks. I just wake up in the morning and I either have a flare up or… read more
This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.
What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.
I get this all of the time, thankfully those close to me understand that when I take a break in a sentence it's because I'm trying to find the right word
I also start to lose my voice if I talk a… read more
Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything around my… read more
Michelle that was amazing! You truly encompassed how I feel everyday. Thanks for that, you did well to concentrate for that long honey!🥰♥️. I'm so proud of you. Love Sam x
Hi Everyone,
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
Hi everyone. I've just been reading all these comments. Wow I can relate to everyone of them. It's 4am here and I am up with jaw pain. I thought it's my teeth!! But now I'm thinking it's this… read more
Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠
It's like being attacked by an invisible animal.
Or maybe getting shot by a laser.
Or being stung.
Lately, I have been going on the offense when I feel that kind of pain.
It's a nerve brain problem.
Does anyone sweat with there fibromyalgia not just at night but during the day as well?
Yes and I've been through menopause once already and not liking going through it again.
just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
That’s what I do now and I get heaps of work and sometimes I have to turn it down because I’m too tired.
I believe pain can cause depression.
I belive that pain limits what you can do. With those limits comes self worth issues and can also cause isolation.
What are your thoughts on the subject?
After all WE are the EXPERTS !
I had epstein Barr virus (glandular fever).. Just before the menopause kicked in... Haven't felt right since 😒
There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):
~ Don’t be afraid to hug her gently, but please no bear hugs
~ Understand that just because… read more
May I please borrow this?
I see lots of discussion and helpful suggestions about dealing with the pain of fibro, and I do appreciate those. However, for me the fatigue is the most debilitating part. Some days I wake up feeling decent, but just taking a shower wears me out and I need a nap.
I am sorry for all of us to have chronic fatigue. I think I had it in the mid '80s. Now that I am 75, I can't separate the fatigue from aging. Also, I am taking Wegovy for weight loss and it is… read more