Fibromyalgia

Questions + Answers

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1 medium

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

posted about 3 years ago
A MyFibroTeam Member said:

10/10 cbd helps to sleep!

posted 4 days ago
9 medium

Finally, a solution to my pants!!! :) LOL

Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything… read more

posted almost 4 years ago
A MyFibroTeam Member said:

LOL! Thanks for the info!..I will surely try that department!..Altough...I will look completely out of place! Too old and Too skinny! I can just say… read more

posted 4 months ago
8 medium

How to help a friend with chronic illness

There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):

~ Don’t be afraid to hug her gently, but please no bear hugs.
~… read more

posted over 1 year ago
A MyFibroTeam Member said:

That is so true. Thanks for compiling it.

posted 3 months ago
0 medium

Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

posted 12 months ago
A MyFibroTeam Member said:

Oh Shirley me too

posted 2 days ago
0 medium

Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

posted almost 4 years ago
A MyFibroTeam Member said:

was so sick i quit my job before my diagnosis. I knew my job (performing 5 functions) and stress of losing my dad was affecting my health. I was… read more

posted 4 days ago
0 medium

Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

posted over 3 years ago
A MyFibroTeam Member said:

I’m new here also, glad to know others have same experience like mine. I find the brain fog gets worse over time, I am embarrassed by what I can’t… read more

posted about 1 month ago
7 medium

Warning-Scam

Hi folks! Wanted to share my experiences with a company named Wellness Product. They offer a free trial of CBD tinctures and capsules. Cancelled my subscription in time, and found out that they had taken$79.95 out of my account. When I called them to complain, they told me that the only way I could get a full refund, I would have to ship back the unopened products, for a shipping total of $11.90. They told me that the best they could do was send a 50% refund. Guess it was free to look at the bottles… read more

posted over 1 year ago
A MyFibroTeam Member said:

Had that happen to me. Put a stop payment on the charge and told bank not to let anything else go through. Got my money put back in account and no more… read more

posted 4 months ago
0 medium

Does anyone else get tongue tied and get words mixed up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

posted 12 months ago
A MyFibroTeam Member said:

I get really bad fibro fog,and my words mixed up.its kind of embarrassing..I've jokingly played it off...but lately it seems it happens alot more… read more

posted 1 day ago
5 medium

I have read that depression can cause pain. I believe the opposite is true.

I believe pain can cause depression.
I belive that pain limits what you can do. With those limits comes self worth issues and can also cause isolation.
What are your thoughts on the subject?
After all WE are the EXPERTS !

posted about 1 year ago
A MyFibroTeam Member said:

I can understand where you are coming from Patricia. It is very depressing not to be able to do the things you used to. I luckily have a good Dr. he… read more

posted 9 days ago
3 medium

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

posted over 3 years ago
A MyFibroTeam Member said:

Hello @A MyFibroTeam Member - we don't remove content from the site because it's older. Some newer members find a lot of useful information in older… read more

posted 2 days ago
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