We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more
I take prilosec and it helps tremendously. I hope I'm not bragging too soon, eventhough Im not bragging. lol Hope you are feeling ok. IDK why I said that because I dont think we ever feel ok.
Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything around my… read more
Michelle that was amazing! You truly encompassed how I feel everyday. Thanks for that, you did well to concentrate for that long honey!🥰♥️. I'm so proud of you. Love Sam x
This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.
What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.
Hi! You are not alone! I have fibromyalgia and other spinal conditions so I take drugs that do ness with your cognition. Since I started taking a pain med recently, I stop mid-sentence at the hard or… read more
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
Hi. Yes! I live in the foothills, 32 miles from town so I only go into town for my dr appts, prescriptions and to the grocery store but every time I get home I'm exhausted for about 2 days.
Does anyone sweat with there fibromyalgia not just at night but during the day as well?
Glad the probanthine helps x
just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
I lost my job of 18 years because of fibro. I had 18 days of pto and used it all for when fibro was bad. I was an Admin Asst and had to do work that was like a janitor. The job took a toll on my from… read more
Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠
Yes I get this in my arm can wake me in the night !
There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):
~ Don’t be afraid to hug her gently, but please no bear hugs
~ Understand that just because… read more
I think someone must have been keeping a log! You've hit so many of the things but I think of and of course I never have something to write it down with and if I do I lose it but other than the hugs… read more
I believe pain can cause depression.
I belive that pain limits what you can do. With those limits comes self worth issues and can also cause isolation.
What are your thoughts on the subject?
After all WE are the EXPERTS !
Sometime even the person does not realize what is going on either
I see lots of discussion and helpful suggestions about dealing with the pain of fibro, and I do appreciate those. However, for me the fatigue is the most debilitating part. Some days I wake up feeling decent, but just taking a shower wears me out and I need a nap.
Please rest when you can! Fatigue is the most troublesome symptom for me, too, along with brain fog. I'm in a flare right now with profound fatigue, brain fog, and tons of pain. Last week, I… read more
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