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Fibromyalgia

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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more

A MyFibroTeam Member said:

Hi Angelapp, Thanks for the recommendation of liothyronine for thyroid disfunction. I will check it out with my Primary MD.😊

posted about 1 month ago

Finally, A Solution To My Pants!!! :) LOL

Finally, A Solution To My Pants!!! :) LOL

Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything around my… read more

A MyFibroTeam Member said:

Me too. Wear my gown and robe all day most days.

posted 2 months ago

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

Exhausted, yes and anxiety level sometimes going up too

posted 7 days ago

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

Hi yes I have that problem too, I was confused because I’m also pre Menopausal and have been struggling with that so I was putting it all down to that but after reading on the site today I have… read more

posted 27 days ago

Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

As far as getting on disability, you have to go approximately 2 years without working at all to get approved. In the state I live in anyways. And ya need a wonderful disability attorney. Or you're… read more

posted 2 months ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

I visited Houston one time on the way to a mission trip in Honduras and I couldn’t believe the humidity! I was soaking wet the whole time in Houston! I feel for you!

posted 3 months ago

How To Help A Friend With Chronic Illness

How To Help A Friend With Chronic Illness

There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):

~ Don’t be afraid to hug her gently, but please no bear hugs
~ Understand that just because… read more

A MyFibroTeam Member said:

I think someone must have been keeping a log! You've hit so many of the things but I think of and of course I never have something to write it down with and if I do I lose it but other than the hugs… read more

posted almost 2 years ago

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠

A MyFibroTeam Member said:

Yes, I did frequently and I took gabapentin initially and then pregabalin for several years. I have since come off this after following a low histamine diet. It seems my IBS, migraines, UTIs, and… read more

posted 2 days ago

I Have Read That Depression Can Cause Pain. I Believe The Opposite Is True.

I Have Read That Depression Can Cause Pain. I Believe The Opposite Is True.

I believe pain can cause depression.
I belive that pain limits what you can do. With those limits comes self worth issues and can also cause isolation.
What are your thoughts on the subject?
After all WE are the EXPERTS !

A MyFibroTeam Member said:

This depression with our condition is so real. I know for me, I have no energy to do anything and I feel like I do not have anyone to talk too. Friends I have few and it gets rough emotionally for me… read more

posted 2 months ago

Does Anyone Else Have Fatigue As Their Primary Symptom With Fibro?

Does Anyone Else Have Fatigue As Their Primary Symptom With Fibro?

I see lots of discussion and helpful suggestions about dealing with the pain of fibro, and I do appreciate those. However, for me the fatigue is the most debilitating part. Some days I wake up feeling decent, but just taking a shower wears me out and I need a nap.

A MyFibroTeam Member said:

Yes, I suffer from extreme Chronic Fatigue. I have no life. It is just exhausting to do anything. If I have to go away for Docter appointments my Docter will give me some OxyContin. Take care I know… read more

posted 4 days ago
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