Fibromyalgia

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Describe what a Flare Up is to you ?

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

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A MyFibroTeam Member said:

When I have a flare up I can’t sleep night or day and after going two or three nights with no sleep, I feel like my brain just quits functioning. I try… read more

posted 24 days ago
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Finally, a solution to my pants!!! :) LOL

Finally, a solution to my pants!!! :) LOL

Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything… read more

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A MyFibroTeam Member said:

I love it! I've actually thought of trying on matenity clothes while passing the clothing area in stores, but you just gave me the courage to go for it!… read more

posted 2 months ago
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How to help a friend with chronic illness

How to help a friend with chronic illness

There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):

~ Don’t be afraid to hug her gently, but please no bear hugs.
~… read more

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A MyFibroTeam Member said:

You're very welcome Mary
Gentle hugs

@A MyFibroTeam Member

posted 2 months ago
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Does anyone get exhausted and depressed after a simple outing?

Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

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A MyFibroTeam Member said:

Those sound like great suggestions. I can either sleep until the cows come home or am up for several nights at a time. I've tried all the suggestions… read more

posted 2 months ago
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Full time employment and fibro

Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

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A MyFibroTeam Member said:

Yep - my health was getting worse and had to go to OH. The doctor said I should consider putting in for early retirement on health grounds. Had to build… read more

edited, originally posted 13 days ago
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Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

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A MyFibroTeam Member said:

All the time & the need to change clothes often.

posted 12 days ago
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Foggy brain

Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

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A MyFibroTeam Member said:

Where do you get carbon60?

posted 13 days ago
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Does anyone else get tongue tied and get words mixed up?

Does anyone else get tongue tied and get words mixed up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

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A MyFibroTeam Member said:

Yes it happens a lot when I was working

posted 8 days ago
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Sleeping all day

Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

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A MyFibroTeam Member said:

I was told a study was done with a certain amount of students where they were deprived of sleep over a fortnight period and they all developed symptoms… read more

posted 13 days ago
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Warning-Scam

Warning-Scam

Hi folks! Wanted to share my experiences with a company named Wellness Product. They offer a free trial of CBD tinctures and capsules. Cancelled my subscription in time, and found out that they had taken$79.95 out of my account. When I called them to complain, they told me that the only way I could get a full refund, I would have to ship back the unopened products, for a shipping total of $11.90. They told me that the best they could do was send a 50% refund. Guess it was free to look at the bottles… read more

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A MyFibroTeam Member said:

Been there with that company too. Got caught twice ( I’m a slow learner). Now I don’t buy anything that has small print. I get my CBD from Hemp Bombs.… read more

posted 4 months ago
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