Fibromyalgia
Questions + Answers
Describe what a Flare Up is to you ?
We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more
I also have all the symptoms you all claim above and my urthrea also hurts so I don't know if I coming down with a bladder infection or not until my… read more
Finally, a solution to my pants!!! :) LOL
Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything… read more
I can't stand a bra. Some days I wear a soft surgical bra. When I wear any other bra I loosen it by mid afternoon. Even the best bras.
How to help a friend with chronic illness
There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):
~ Don’t be afraid to hug her gently, but please no bear hugs.
~… read more
Full time employment and fibro
just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
well ladies and gentlemen I didn't lose my job but I bowed out I was going in and out of depression I have no idea where that came from burning the… read more
Warning-Scam
Hi folks! Wanted to share my experiences with a company named Wellness Product. They offer a free trial of CBD tinctures and capsules. Cancelled my subscription in time, and found out that they had taken$79.95 out of my account. When I called them to complain, they told me that the only way I could get a full refund, I would have to ship back the unopened products, for a shipping total of $11.90. They told me that the best they could do was send a 50% refund. Guess it was free to look at the bottles… read more
I am sorry to hear that. I pray that you are successful with your case. I experienced that this summer and I had to go through my credit union.
Foggy brain
What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.
Sissy,
I understand. If you are ever lonely, you still at least have this site with others to chat with. Always remember that Our Heavenly Father, Jesus… read more
Does anyone get exhausted and depressed after a simple outing?
Hi Everyone,
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
I too have a difficult time getting out of a car! I am in a Fibro fog frequently & I also have Rheumatoid Arthritis. So it is very painful to move!… read more
How do you respond to insensitive remarks?
I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".
Does anyone have any suggestions on how to handle these scenarios?
Thanks in advance!
I know what you mean but apart from a sarcastic answer there’s not much to say
Apps for Coping Strategies
I was given some great resources today at a meeting I went to.
One of those resources was some great apps.
Below are a list of these. Hopefully you can find one or more of these that can help you in your daily life.
Mind Box
My Calm Beat
What's up
Box Breathing
Headspace
Insight Timer
The Sleep School
Some of these you mentioned like the breathing that is part of physical therapy learn to relax it's all about your breathing that causes the pain in… read more
Sleeping all day
I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?
@A MyFibroTeam User yes I have insomnia for more than 7 yrs and had had 3 or 4 sleep apnea test done but none have helped me sleep better. I have tried… read more