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Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more

posted January 15, 2016
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A MyFibroTeam Member

I have had everything you are talking about my doc told me it will just get worse, I have had to change my soaps and hair shampoo I find natural organic works best no more itching also cbd oil with no… read more

posted November 4

Finally, A Solution To My Pants!!! :) LOL

Finally, A Solution To My Pants!!! :) LOL

Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything around my… read more

posted April 14, 2015
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A MyFibroTeam Member

Michelle that was amazing! You truly encompassed how I feel everyday. Thanks for that, you did well to concentrate for that long honey!🥰♥️. I'm so proud of you. Love Sam x

posted January 9

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

posted February 15, 2018
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A MyFibroTeam Member

Dido, same with me, I did go to a lawyer to help. I love to work yes yes yes, however, the spirit is willing the flesh is not keep up and so though I have tried and was hired for jobs, I was… read more

posted October 1

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

posted March 2, 2018
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A MyFibroTeam Member

I went to the hospital yesterday as my granddaughter was in there with breathing issue. I stayed the day and took them home which is in a different town and drove home and made it before dark. I was… read more

posted November 13

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

posted September 8, 2017
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A MyFibroTeam Member

Thanks

posted November 14

Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

posted February 25, 2015
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A MyFibroTeam Member

No one ever said anything direct but as I aged in my job it seems that I had more symptoms and my Fibro and itd symptom were not understood by my superiors and it was looked on as slacking which was… read more

posted September 5

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠

posted March 30, 2017
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A MyFibroTeam Member

Mine is in my legs, particularly my calves and feet.

posted November 22

How To Help A Friend With Chronic Illness

How To Help A Friend With Chronic Illness

There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):

~ Don’t be afraid to hug her gently, but please no bear hugs
~ Understand that just because… read more

posted October 29, 2017
A MyFibroTeam Member

I think someone must have been keeping a log! You've hit so many of the things but I think of and of course I never have something to write it down with and if I do I lose it but other than the hugs… read more

posted October 6, 2019

I Have Read That Depression Can Cause Pain. I Believe The Opposite Is True.

I Have Read That Depression Can Cause Pain. I Believe The Opposite Is True.

I believe pain can cause depression.
I belive that pain limits what you can do. With those limits comes self worth issues and can also cause isolation.
What are your thoughts on the subject?
After all WE are the EXPERTS !

posted December 9, 2017
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A MyFibroTeam Member

yes pain can and does course depression i have done a lot of reading about it and have found that if your pain is not controlled you can become very depressed.

posted September 29

Does Anyone Else Have Fatigue As Their Primary Symptom With Fibro?

Does Anyone Else Have Fatigue As Their Primary Symptom With Fibro?

I see lots of discussion and helpful suggestions about dealing with the pain of fibro, and I do appreciate those. However, for me the fatigue is the most debilitating part. Some days I wake up feeling decent, but just taking a shower wears me out and I need a nap.

posted February 24, 2018
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A MyFibroTeam Member

ughhhh its so frustrating!

posted October 26
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