Fibromyalgia
Questions + Answers
Describe what a Flare Up is to you ?
We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more
@A MyFibroTeam Member, You are probably the first person I have heard say you work 2.5 days a week and down 4 days. Before I was dx with Fibro I had a… read more
Finally, a solution to my pants!!! :) LOL
Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything… read more
LOL! Thanks for the info!..I will surely try that department!..Altough...I will look completely out of place! Too old and Too skinny! I can just say… read more
How to help a friend with chronic illness
There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):
~ Don’t be afraid to hug her gently, but please no bear hugs.
~… read more
That is so true. Thanks for compiling it.
Full time employment and fibro
just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
Does anyone get exhausted and depressed after a simple outing?
Hi Everyone,
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
Warning-Scam
Hi folks! Wanted to share my experiences with a company named Wellness Product. They offer a free trial of CBD tinctures and capsules. Cancelled my subscription in time, and found out that they had taken$79.95 out of my account. When I called them to complain, they told me that the only way I could get a full refund, I would have to ship back the unopened products, for a shipping total of $11.90. They told me that the best they could do was send a 50% refund. Guess it was free to look at the bottles… read more
Had that happen to me. Put a stop payment on the charge and told bank not to let anything else go through. Got my money put back in account and no more… read more
Foggy brain
What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.
@A MyFibroTeam Member,
I take a prescription 50,000 IU's of Vitamin D, once a week for bone loss. As far as helping with pain, I've not noticed. I… read more
How do you respond to insensitive remarks?
I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".
Does anyone have any suggestions on how to handle these scenarios?
Thanks in advance!
Sleeping all day
I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?
I had that really bad. My dr gave me bupropion which helps me stay awake. Anxiety can be a side effect, so I take a little clonazepam and that helps.… read more
Does anyone else get tongue tied and get words mixed up?
This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.
What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.
All the time I get words mixed up.
