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Fibromyalgia

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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more

A MyFibroTeam Member said:

Surrender then serenity. You have described it so well. We really can't share it with anyone for you'd rather crawl in a whole than reciting how you feel again. So glad to be there with the team. Many… read more

posted 7 months ago

Finally, A Solution To My Pants!!! :) LOL

Finally, A Solution To My Pants!!! :) LOL

Comfort is not usually a word surrounding Fibromyalgia sufferers. But I have to tell you, I'm so happy that I have come up with this idea. Some of you may have already known this trick and maybe I'm the last one to know. But at a risk of sounding ridiculous, here it goes. I have suffered with the pain of fibromyalgia along with the rest of you. I must say, even wearing clothes gets painful at times. I especially dislike wearing shorts or jeans or skirts. Basically anything around my… read more

A MyFibroTeam Member said:

Thank you for sharing. I never thought about wearing maternity clothes but it makes perfect sense. Off to the store I go!

posted 3 days ago

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

Yes all the time. 😔

posted 13 days ago

Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

I lost my job cause of fibre I was working at a supermarket which I enjoyed until I started having a lot of accident which ended up as fibre I did try and apply for PIP three times but no go so got a… read more

posted 3 months ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

Today was a big day of sweating. Ugh. Have had alot of stress today also but the sweating comes when I least expect it.

posted about 1 month ago

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

Sometimes I get my words mixed up or completely forget what I wanted to say.

posted about 9 hours ago

How To Help A Friend With Chronic Illness

How To Help A Friend With Chronic Illness

There are many ways to reach out to help, and of course the needs will change for each person. Big things like helping clean the house or cooking meals can help, but often it’s the little things that are the best, like opening the door for them, or remembering not to wear perfume. Here’s a list of a few things that can help (with thanks to many other websites I‘ve read similar lists on over the years):

~ Don’t be afraid to hug her gently, but please no bear hugs
~ Understand that just because… read more

A MyFibroTeam Member said:

I think someone must have been keeping a log! You've hit so many of the things but I think of and of course I never have something to write it down with and if I do I lose it but other than the hugs… read more

posted over 1 year ago

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠

A MyFibroTeam Member said:

Neurontin has helped the stabbing pains for me.

posted 3 days ago

I Have Read That Depression Can Cause Pain. I Believe The Opposite Is True.

I Have Read That Depression Can Cause Pain. I Believe The Opposite Is True.

I believe pain can cause depression.
I belive that pain limits what you can do. With those limits comes self worth issues and can also cause isolation.
What are your thoughts on the subject?
After all WE are the EXPERTS !

A MyFibroTeam Member said:

We all know about that! I was a RN and cared about someone's illness and would look it up cuz I WANNA KNOW! My rn friends understand and give love unconditionally. Unfortunately only 1 is left so… read more

posted about 12 hours ago

Sleeping All Day

Sleeping All Day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

A MyFibroTeam Member said:

I totally have this. When the pandemic hit and we were on lock-down, I had it every day for months!

posted about 1 hour ago
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