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Fibromyalgia

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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

Don't give up first thing you can do is look up your diet, have better night sleep if you can, doctors put you on what medications? I also have the same… read more

posted about 2 months ago

Sleeping All Day

Sleeping All Day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

A MyFibroTeam Member said:

my heart hurts for you due to I soooo understand.....I take seraquel at night to try and help me sleep and on antivan....they are careful with what they… read more

posted 7 days ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

I’m getting worse and worse with no energy but sure have energy to sweat worse. I get any worse I’ll be crawling on the floor.. nope not enough energy… read more

posted about 6 hours ago

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

I do that a lot with getting words mixed up! I hadn’t related that to Fibro until now. Also, sometimes I will be talking to someone about something and… read more

posted 2 days ago

Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

A MyFibroTeam Member said:

Limit your daily activities, limit caffeine or eliminate it totally if POS. Eat more fruits and vegetables less meats especially red. If you get sick… read more

posted 29 days ago

Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

A MyFibroTeam Member said:

Dear lord yes, on the bad days this is exactly what it feels like, it’s excruciatingly painful. Listening to healing music gets me to a peaceful feeling… read more

posted about 1 month ago

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

yes, it is so awful. I am normally in bed by 9, and need a nap in my chair to get up to it. No, people definitely do not understand this fatigue they… read more

posted 3 days ago

How Do You Respond To Insensitive Remarks?

How Do You Respond To Insensitive Remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

A MyFibroTeam Member said:

Stretching with Fibro is different than stretching for normal people. I have to soak in a hot tub first. Every night I soak in hot tub, often with epsom… read more

posted about 2 months ago

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?

A MyFibroTeam Member said:

Yes, I frequently experience what feels like a pin sticking me out of the blue. Very disconcerting, especially went there's someone with you.

posted about 1 month ago

Foggy Brain

Foggy Brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

A MyFibroTeam Member said:

I found taking 200mg of coenzyme Q10 at breakfast helped me be more alert. I find talking easier now as I pause a lot less as I am confused a lot less.… read more

posted 4 months ago
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