just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?
We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more
What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.
I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".
Does anyone have any suggestions on how to handle these scenarios?
Thanks in advance!
Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!
When I was first diagnosed, I was exhausted and achey all over. Mostly in my back and knees and it would wax and wane. Now the pain has spread through my entire body including my wrists, ankles and feet. Every morning when I wake up I dread getting out of bed because I am so stiff and sore, my pain level is a 10. My back, shoulders and neck are extremely sore and tender ALL the time, and I need to rest with my heating pad a few times throughout the day. This was not the… read more
How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works
Is there anything u can do to help fibro fog?
Just wondering how many of you have been diagnosed with either or both ..... and was it before or after your fibro diagnosis?
Also, any of you who haven't been tested .... are you curious to whether you have it and will you consider asking your doctor for a test?
Huggs everyone :)