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Fibromyalgia

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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

As far as getting on disability, you have to go approximately 2 years without working at all to get approved. In the state I live in anyways. And ya need a wonderful disability attorney. Or you're… read more

posted 2 months ago

Sleeping All Day

Sleeping All Day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

A MyFibroTeam Member said:

I totally have this. When the pandemic hit and we were on lock-down, I had it every day for months!

posted 5 months ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

I visited Houston one time on the way to a mission trip in Honduras and I couldn’t believe the humidity! I was soaking wet the whole time in Houston! I feel for you!

posted 3 months ago

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

Hi yes I have that problem too, I was confused because I’m also pre Menopausal and have been struggling with that so I was putting it all down to that but after reading on the site today I have… read more

posted 27 days ago

Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

A MyFibroTeam Member said:

It does help to eat a protein bar or something when I am fatigued.

posted 15 days ago

Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more

A MyFibroTeam Member said:

Hi Angelapp, Thanks for the recommendation of liothyronine for thyroid disfunction. I will check it out with my Primary MD.😊

posted about 1 month ago

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠

A MyFibroTeam Member said:

Yes, I did frequently and I took gabapentin initially and then pregabalin for several years. I have since come off this after following a low histamine diet. It seems my IBS, migraines, UTIs, and… read more

posted 2 days ago

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

Exhausted, yes and anxiety level sometimes going up too

posted 7 days ago

How Do You Respond To Insensitive Remarks?

How Do You Respond To Insensitive Remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

A MyFibroTeam Member said:

I bend my head down & give a big sigh - which is easy for us!! & shake your head as in "No" & head for the nearest bed/sofa etc-I find that usually works... all the best

posted about 1 month ago

How Do You Ask For Emotional Support When You Are Experiencing a Flare? Any Advice You Would Share With Others?

How Do You Ask For Emotional Support When You Are Experiencing a Flare? Any Advice You Would Share With Others?

A MyFibroTeam Member said:

I totally agree
Shits if any kind arre scary to me
MY PERSONAL OPINION
Have you ever watched the show
(How it’s made?)
They build all sorts if stuff from scratch
Etc
I watched how the flu shot was… read more

posted about 2 months ago
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