Fibromyalgia
Questions + Answers
Full time employment and fibro
Full time employment and fibro
just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
Sleeping all day
Sleeping all day
I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?
I was told a study was done with a certain amount of students where they were deprived of sleep over a fortnight period and they all developed symptoms… read more
Describe what a Flare Up is to you ?
Describe what a Flare Up is to you ?
We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more
When I have a flare up I can’t sleep night or day and after going two or three nights with no sleep, I feel like my brain just quits functioning. I try… read more
Sweating
Sweating
Does anyone sweat with there fibromyalgia not just at night but during the day as well?
Fibro Flare
Fibro Flare
How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works
It varies how long a flare up lasts I have had continuous flare ups and been getting worse some have flare ups that can come and go for a few days to… read more
How do you respond to insensitive remarks?
How do you respond to insensitive remarks?
I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".
Does anyone have any suggestions on how to handle these scenarios?
Thanks in advance!
For me, as I just shared in another response, my sense that I am more often in the educator seat than the supported seat, even with all of my specialty… read more
Does anyone else get tongue tied and get words mixed up?
Does anyone else get tongue tied and get words mixed up?
This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.
What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.
Foggy brain
Foggy brain
What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.
Does anyone get exhausted and depressed after a simple outing?
Does anyone get exhausted and depressed after a simple outing?
Hi Everyone,
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
Those sound like great suggestions. I can either sleep until the cows come home or am up for several nights at a time. I've tried all the suggestions… read more
Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?
Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?
Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!
