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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Full Time Employment And Fibro
A MyFibroTeam Member asked a question 💭

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

posted February 25, 2015
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A MyFibroTeam Member

I lost my job of 18 years because of fibro. I had 18 days of pto and used it all for when fibro was bad. I was an Admin Asst and had to do work that was like a janitor. The job took a toll on my from… read more

posted February 21
Does Anyone Else Get Tongue Tied And Get Words Mixed Up?
A MyFibroTeam Member asked a question 💭

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

posted February 15, 2018
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A MyFibroTeam Member

Hi! You are not alone! I have fibromyalgia and other spinal conditions so I take drugs that do ness with your cognition. Since I started taking a pain med recently, I stop mid-sentence at the hard or… read more

posted February 16
Sweating
A MyFibroTeam Member asked a question 💭

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

posted September 8, 2017
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A MyFibroTeam Member

Glad the probanthine helps x

posted February 1
Sleeping All Day
A MyFibroTeam Member asked a question 💭

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

posted January 19, 2016
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A MyFibroTeam Member

Same here, also. Mr Snooze! And I just noticed it today and was doing web searches trying to figure out if it was part of fibromyalgia. Thanks to your post, and all the replies, I can say it is. Not… read more

posted March 13
Fibro Flare
A MyFibroTeam Member asked a question 💭

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

posted March 26, 2017
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A MyFibroTeam Member

Lots of prayer.

posted March 13
Describe What A Flare Up Is To You ?
A MyFibroTeam Member asked a question 💭

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more

posted January 15, 2016
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A MyFibroTeam Member

I take prilosec and it helps tremendously. I hope I'm not bragging too soon, eventhough Im not bragging. lol Hope you are feeling ok. IDK why I said that because I dont think we ever feel ok.

posted March 14
Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You
A MyFibroTeam Member asked a question 💭

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠

posted March 30, 2017
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A MyFibroTeam Member

Yes I get this in my arm can wake me in the night !

posted 18 hours ago
Does Anyone Get Exhausted And Depressed After A Simple Outing?
A MyFibroTeam Member asked a question 💭

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

posted March 2, 2018
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A MyFibroTeam Member

Hi. Yes! I live in the foothills, 32 miles from town so I only go into town for my dr appts, prescriptions and to the grocery store but every time I get home I'm exhausted for about 2 days.

posted January 21
Stress And Memory
A MyFibroTeam Member asked a question 💭

Does your brain fog and memory loss get worse under stress or is it consistent?

posted January 8, 2018
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A MyFibroTeam Member

Yes agree that stress makes fiber worse, but….. I also notice that Fibro gives you stress and makes you feel more irritable, more jumpy, and that causes stress, so you go around in circles, which… read more

posted February 15
How Do You Respond To Insensitive Remarks?
A MyFibroTeam Member asked a question 💭

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

posted July 7, 2015
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A MyFibroTeam Member

The spoon theory is one I try and use.....

posted January 4
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