Fibromyalgia

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Full time employment and fibro

Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

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A MyFibroTeam Member said:

Yep - my health was getting worse and had to go to OH. The doctor said I should consider putting in for early retirement on health grounds. Had to build… read more

edited, originally posted 13 days ago
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Sleeping all day

Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

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A MyFibroTeam Member said:

I was told a study was done with a certain amount of students where they were deprived of sleep over a fortnight period and they all developed symptoms… read more

posted 13 days ago
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Describe what a Flare Up is to you ?

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

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A MyFibroTeam Member said:

When I have a flare up I can’t sleep night or day and after going two or three nights with no sleep, I feel like my brain just quits functioning. I try… read more

posted 24 days ago
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Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

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A MyFibroTeam Member said:

All the time & the need to change clothes often.

posted 12 days ago
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Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

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A MyFibroTeam Member said:

It varies how long a flare up lasts I have had continuous flare ups and been getting worse some have flare ups that can come and go for a few days to… read more

posted 2 months ago
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How do you respond to insensitive remarks?

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

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A MyFibroTeam Member said:

For me, as I just shared in another response, my sense that I am more often in the educator seat than the supported seat, even with all of my specialty… read more

posted 13 days ago
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Does anyone else get tongue tied and get words mixed up?

Does anyone else get tongue tied and get words mixed up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

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A MyFibroTeam Member said:

Yes it happens a lot when I was working

posted 8 days ago
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Foggy brain

Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

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A MyFibroTeam Member said:

Where do you get carbon60?

posted 13 days ago
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Does anyone get exhausted and depressed after a simple outing?

Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

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A MyFibroTeam Member said:

Those sound like great suggestions. I can either sleep until the cows come home or am up for several nights at a time. I've tried all the suggestions… read more

posted 2 months ago
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Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!

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A MyFibroTeam Member said:

When I had it I would feel like if I didn't lie down I would fall down. I literally had to go to bed and sleep it off as I couldn't function at all.

posted 2 months ago
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