Fibromyalgia

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Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

posted almost 4 years ago
A MyFibroTeam Member said:

I gone to 2.5 days which as helped me ! But if flare up continues I will have to rethink x work !!!

posted 16 days ago
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Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

posted almost 3 years ago
A MyFibroTeam Member said:

I had that really bad. My dr gave me bupropion which helps me stay awake. Anxiety can be a side effect, so I take a little clonazepam and that helps.… read more

posted 14 days ago
1 medium

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

posted almost 3 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member, You are probably the first person I have heard say you work 2.5 days a week and down 4 days. Before I was dx with Fibro I had a… read more

posted 15 days ago
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Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

posted about 3 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member,

I take a prescription 50,000 IU's of Vitamin D, once a week for bone loss. As far as helping with pain, I've not noticed. I… read more

posted 3 months ago
3 medium

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

posted over 3 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member,

Very Well Said!

posted 11 days ago
2 medium

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

posted over 1 year ago
A MyFibroTeam Member said:

Do hope you are feeling better and wishes for a good holiday for all of you out there and a better new year to come

posted 2 days ago
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Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

posted 10 months ago
A MyFibroTeam Member said:

Me too !

posted 4 days ago
3 medium

Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!

posted over 3 years ago
A MyFibroTeam Member said:

No your not going mad it’s just Fibromyalgia. Sounds like you have a lot going on in your life.
Have a pain free day. God Bless

posted 14 days ago
4 medium

Why is my Fibro Pain Getting Worse so Fast?

When I was first diagnosed, I was exhausted and achey all over. Mostly in my back and knees and it would wax and wane. Now the pain has spread through my entire body including my wrists, ankles and feet. Every morning when I wake up I dread getting out of bed because I am so stiff and sore, my pain level is a 10. My back, shoulders and neck are extremely sore and tender ALL the time, and I need to rest with my heating pad a few times throughout the day. This was not the… read more

posted almost 3 years ago
A MyFibroTeam Member said:

I have heard from hundreds of people I read a lot of literature and everybody has the same complaint haven't seen anything different yet. I've seen a… read more

posted 9 days ago
2 medium

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

posted over 1 year ago
A MyFibroTeam Member said:

If I come in from cold I sweat. If it’s hot it’s ridiculous and even getting dressed makes me sweat. There is no point washing my hair when by the time… read more

posted about 20 hours ago
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