Fibromyalgia

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Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

posted almost 4 years ago
A MyFibroTeam Member said:

was so sick i quit my job before my diagnosis. I knew my job (performing 5 functions) and stress of losing my dad was affecting my health. I was… read more

posted 4 days ago
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Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

posted about 3 years ago
A MyFibroTeam Member said:

Yes classic symptoms, we don’t sleep for very long each time so we never get enough sleep.

posted 6 days ago
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Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

posted about 3 years ago
A MyFibroTeam Member said:

10/10 cbd helps to sleep!

posted 4 days ago
3 medium

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

posted over 3 years ago
A MyFibroTeam Member said:

Hello @A MyFibroTeam Member - we don't remove content from the site because it's older. Some newer members find a lot of useful information in older… read more

posted 2 days ago
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Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

posted over 3 years ago
A MyFibroTeam Member said:

I’m new here also, glad to know others have same experience like mine. I find the brain fog gets worse over time, I am embarrassed by what I can’t… read more

posted about 1 month ago
2 medium

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

posted almost 2 years ago
A MyFibroTeam Member said:

It can last as long as 1 or 2 days, 2 weeks. Sorry.

posted about 23 hours ago
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Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

posted 12 months ago
A MyFibroTeam Member said:

Oh Shirley me too

posted 2 days ago
2 medium

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

posted over 1 year ago
A MyFibroTeam Member said:

No just us sometimes! It is so hard to go through all of this crude!

posted 2 days ago
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Does anyone else get tongue tied and get words mixed up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

posted 12 months ago
A MyFibroTeam Member said:

I get really bad fibro fog,and my words mixed up.its kind of embarrassing..I've jokingly played it off...but lately it seems it happens alot more… read more

posted 1 day ago
3 medium

Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!

posted almost 4 years ago
A MyFibroTeam Member said:

Same here. It's horrible. People say make a list. Well sure I can do that, but I can never remember where I put the list! LOL.

posted about 1 month ago
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