Fibromyalgia

Questions + Answers

Don't see your question? ask question
View:
0 medium

Full time employment and fibro

Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

2 mini
A MyFibroTeam Member said:

i came into fibro while working at home as a alterationist. I feel very lucky that i started this option before cancer & the resulting F word came… read more

posted 10 days ago
0 medium

Sleeping all day

Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

5 mini
A MyFibroTeam Member said:

I have erractic sleeping patterns. Before a flare I have insomnia and after I am so tired I cannot keep my eyes open.

posted 1 day ago
1 medium

Describe what a Flare Up is to you ?

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

7 mini
A MyFibroTeam Member said:

@A MyFibroTeam Member, me too, I don't like admitting to it though because when I do I'm looked at funny or I'm automatically judged.

posted 7 days ago
2 medium

Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

8 mini
A MyFibroTeam Member said:

I’m on flare day 10 NOW after 2 or 3 days of resting from a 7 day flare within last 2-3 wks. Tried Lyrica & Cymbslta = bad side effects. I can ko… read more

posted 5 days ago
2 medium

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

1 mini
A MyFibroTeam Member said:

I thought it was my Savella too but I tried decreasing my dose for 2 months and it made no difference with the sweating. Plus, I had more pain. So, back… read more

posted 9 days ago
3 medium

How do you respond to insensitive remarks?

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

6 mini
A MyFibroTeam Member said:

@A MyFibroTeam Member, I know it's annoying and seems impossible, but it's true, exercising will make you feel better and give you energy. I've been… read more

posted 4 days ago
0 medium

Foggy brain

Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

5 mini
A MyFibroTeam Member said:

I get it, I worked as a nurse for 38 yrs before having to go on disability. I've just started taking a supplement called Carbon60. It's a very strong… read more

posted 10 days ago
0 medium

Does anyone get exhausted and depressed after a simple outing?

Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

9 mini
A MyFibroTeam Member said:

Those sound like great suggestions. I can either sleep until the cows come home or am up for several nights at a time. I've tried all the suggestions… read more

posted 4 days ago
0 medium

Does anyone else get tongue tied and get words mixed up?

Does anyone else get tongue tied and get words mixed up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

7 mini
A MyFibroTeam Member said:

@A MyFibroTeam Member Me too, trembling hands makes it hard for me to write/type. I also get it different scenarios when coming out of sleep or awake… read more

posted 7 days ago
3 medium

Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!

3 mini
A MyFibroTeam Member said:

When I had it I would feel like if I didn't lie down I would fall down. I literally had to go to bed and sleep it off as I couldn't function at all.

posted 11 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in

Welcome back!

Log in to gain access to the thousands of comments being shared on MyFibroTeam.

log in
×