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Fibromyalgia

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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

I lost my job cause of fibre I was working at a supermarket which I enjoyed until I started having a lot of accident which ended up as fibre I did try… read more

posted 18 days ago

Sleeping All Day

Sleeping All Day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

A MyFibroTeam Member said:

I feel all of you i been battling this for 32yrs now and its a hell to li e with. God help me. Also if anyone wants to know what has helped me hit me… read more

posted 5 months ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

ohh i hate my face sweat

posted about 6 hours ago

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

i start then i just throw my tongue then i do a rhazzle and start again

posted 3 days ago

Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

A MyFibroTeam Member said:

You are so right Annzie.

posted about 1 month ago

Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

A MyFibroTeam Member said:

Surrender then serenity. You have described it so well. We really can't share it with anyone for you'd rather crawl in a whole than reciting how you… read more

posted 5 months ago

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

Yes all the time that's why I hardly ever go out. My husband and I use to go out for dinner at least once every week and it must be over 10/13 year's… read more

posted 2 months ago

How Do You Respond To Insensitive Remarks?

How Do You Respond To Insensitive Remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

A MyFibroTeam Member said:

Its an insult when they say your fine,ive had it.You know you cant make people understand when you look so good.Hurtful,maybe its time to think of… read more

posted 6 months ago

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?

A MyFibroTeam Member said:

Yes all the time it's as you say like you've been strapped with something it horrendous no one will understand how it feels

posted 10 days ago

Stress And Memory

Stress And Memory

Does your brain fog and memory loss get worse under stress or is it consistent?

A MyFibroTeam Member said:

I have gone for tests for dementia as it runs in the family. i have noticed a considerable decrease in my memory. i forget words as i am speaking, i… read more

posted about 3 hours ago
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