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Fibromyalgia

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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

I lost my job cause of fibre I was working at a supermarket which I enjoyed until I started having a lot of accident which ended up as fibre I did try and apply for PIP three times but no go so got a… read more

posted 3 months ago

Sleeping All Day

Sleeping All Day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

A MyFibroTeam Member said:

I totally have this. When the pandemic hit and we were on lock-down, I had it every day for months!

posted about 1 hour ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

Today was a big day of sweating. Ugh. Have had alot of stress today also but the sweating comes when I least expect it.

posted about 1 month ago

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

Sometimes I get my words mixed up or completely forget what I wanted to say.

posted about 9 hours ago

Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

A MyFibroTeam Member said:

My flares have lasted more than 4 months. The RX doesn't work when I am in extreme pain and that is almost every other day. 😔😪

posted 1 day ago

Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your body… read more

A MyFibroTeam Member said:

Surrender then serenity. You have described it so well. We really can't share it with anyone for you'd rather crawl in a whole than reciting how you feel again. So glad to be there with the team. Many… read more

posted 7 months ago

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

Yes all the time. 😔

posted 13 days ago

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?😠

A MyFibroTeam Member said:

Neurontin has helped the stabbing pains for me.

posted 3 days ago

How Do You Ask For Emotional Support When You Are Experiencing a Flare? Any Advice You Would Share With Others?

How Do You Ask For Emotional Support When You Are Experiencing a Flare? Any Advice You Would Share With Others?

A MyFibroTeam Member said:

My husband & I got the Moderna first & second shots. He was fine with both. He is diabetic with cardiac issues. He only has 25% of his heart working. I have fibro & its companions. I reacted to the… read more

edited, originally posted 10 days ago

How Do You Respond To Insensitive Remarks?

How Do You Respond To Insensitive Remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

A MyFibroTeam Member said:

Its an insult when they say your fine,ive had it.You know you cant make people understand when you look so good.Hurtful,maybe its time to think of yourself now.Take care xx

posted 8 months ago
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