Fibromyalgia

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Full time employment and fibro

Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

I managed to go short term disability into long term now, but it is very confusing. I can't get my head around all the info. The fogs are frustrating… read more

posted 2 days ago

Sleeping all day

Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

A MyFibroTeam Member said:

I think maybe this Fibromyalgia affects the circadian rhythm. It is a brain function and Fibromyalgia affects the CNS/,brain so I imagine it must impact… read more

posted 19 days ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

Just spoken to the Dr and he's now backtracking saying there's no specialist because I've already had a sympathectomy and apart from increasing the pro… read more

posted 15 days ago

Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

A MyFibroTeam Member said:

I developed asthma when I was in my early 40,s. That took up a lot of my time! Never had any other troubles. Life went on. In 2016 I had my 50th class… read more

posted 18 days ago

Describe what a Flare Up is to you ?

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

A MyFibroTeam Member said:

A flare up to me is the whole body or just any part of body. Like yesterday my shoulders flared up so bad i had go bed to keep warm. Today my body in… read more

posted 2 months ago

Does anyone else get tongue tied and get words mixed up?

Does anyone else get tongue tied and get words mixed up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

sorry but that is part off are problem short term memory or no memory and problems talking trying to remember things is hard my memory is worse than a… read more

posted 9 days ago

How do you respond to insensitive remarks?

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

A MyFibroTeam Member said:

For me, as I just shared in another response, my sense that I am more often in the educator seat than the supported seat, even with all of my specialty… read more

posted 7 months ago

Does anyone get exhausted and depressed after a simple outing?

Does anyone get exhausted and depressed after a simple outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

There are times I went out to go grocery shopping got to the store and sat in my car only to leave just because I just couldn't muster the energy. I… read more

posted 26 days ago

Foggy brain

Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

A MyFibroTeam Member said:

Where do you get carbon60?

posted 7 months ago

Stress and memory

Stress and memory

Does your brain fog and memory loss get worse under stress or is it consistent?

A MyFibroTeam Member said:

It is said that these will help; Chess, checkers, bridge, and jigsaw are good choices too. Games that require strategic thinking help keep your brain… read more

posted 19 days ago
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