just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?
Thatās what I do now and I get heaps of work and sometimes I have to turn it down because Iām too tired.
Does anyone sweat with there fibromyalgia not just at night but during the day as well?
Yes and I've been through menopause once already and not liking going through it again.
This has been a very busy week at work - my body isnāt so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - itās usually the first body part to experience pain.
What concerns me today though is that Iām struggling to speak properly. Iām getting words and letters mixed up like saying ābaper pagā instead of āpaper bagā. Does anyone else have this problem? Itās a bit scary.
I get this all of the time, thankfully those close to me understand that when I take a break in a sentence it's because I'm trying to find the right word
I also start to lose my voice if I talk aā¦ read more
I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?
you may have sleep apnea. You could be low in iron and B-12, bloodwork would tell the doctor what you need. Rhuematologist could tell you
How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works
For me on an average of a week or two you need to make sure you are taking turmeric and make sure that you are taking a liquid b supplemental vitamin that has all of them in it and cool compressā¦ read more
We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and ravages your bodyā¦ read more
@A MyFibroTeam Member when I get a flare it is pretty much like yours. Everything hurts some places like my hips can lay me out for weeks. I just wake up in the morning and I either have a flare up orā¦ read more
Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?š
It's like being attacked by an invisible animal.
Or maybe getting shot by a laser.
Or being stung.
Lately, I have been going on the offense when I feel that kind of pain.
It's a nerve brain problem.
Hi Everyone,
For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!
Hi everyone. I've just been reading all these comments. Wow I can relate to everyone of them. It's 4am here and I am up with jaw pain. I thought it's my teeth!! But now I'm thinking it's thisā¦ read more
Does your brain fog and memory loss get worse under stress or is it consistent?
Couldn't agree more with Suzie. Because we tend to get isolated and because of the possible inflammation in our CNS because of Fibromyalgia, we need to be very aware of brain health. Part of that isā¦ read more
I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".
Does anyone have any suggestions on how to handle these scenarios?
Thanks in advance!
I agree with tulip. Don't wear yourself out explaining the way you feel. Your friends don't need it & your enemies won't believe anyway. Good way to weed them out & be grateful for the ones thatā¦ read more