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Fibromyalgia

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Full Time Employment And Fibro

Full Time Employment And Fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

A MyFibroTeam Member said:

I had to go on disability and I was only 52 when I had to leave my jobs. I had 2 jobs that I loved dearly and had to walk away from.I suffer from so… read more

posted 1 day ago

Sleeping All Day

Sleeping All Day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

A MyFibroTeam Member said:

I find my Medical Marijuana helps too. I have a Vapourizer for my bud & gel capsules, too.

posted 13 days ago

Sweating

Sweating

Does anyone sweat with there fibromyalgia not just at night but during the day as well?

A MyFibroTeam Member said:

I take pro banthine bromide and it’s brilliant at stopping the facial sweats. Take one 3 times a day although on odd days I take an extra one and they’… read more

posted 1 day ago

Fibro Flare

Fibro Flare

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

A MyFibroTeam Member said:

My severe flares will last a few days to a week but I have pain or discomfort to some extent almost daily. Have just learned to expect it and am trying… read more

posted about 1 month ago

Describe What A Flare Up Is To You ?

Describe What A Flare Up Is To You ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

A MyFibroTeam Member said:

gabapentin helps me. It doesn't take all of it away but it can take the edge off

posted 23 days ago

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

Does Anyone Else Get Tongue Tied And Get Words Mixed Up?

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.

A MyFibroTeam Member said:

Omg I can't think of what I want to say. It's embarrassing. My last bout with stress migraine was the worst. Took me a long time to get back to a kind… read more

posted about 20 hours ago

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Does Anyone Get Exhausted And Depressed After A Simple Outing?

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

A MyFibroTeam Member said:

I hear ya!! Same here to.

posted 7 days ago

How Do You Respond To Insensitive Remarks?

How Do You Respond To Insensitive Remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

A MyFibroTeam Member said:

For me, as I just shared in another response, my sense that I am more often in the educator seat than the supported seat, even with all of my specialty… read more

posted 9 months ago

Foggy Brain

Foggy Brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

A MyFibroTeam Member said:

I found taking 200mg of coenzyme Q10 at breakfast helped me be more alert. I find talking easier now as I pause a lot less as I am confused a lot less.… read more

posted 15 days ago

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Does Anyone Else Get Pain Like Someone Is Sticking A Pin In You

Its like a sudden jabbing pain like someone has stabbed you with a pin or several pins. Its is so embarrassing when it happens and I have visitors. We can be talking away and suddenly I will jump up and shout OUCH!.
I feel such a fool, they must think I am nuts.
When my guest asks what's wrong I just reply I think I was stung by a wasp. Cos that's kind of what it feels like. Does anyone else experience this sudden random pain?

A MyFibroTeam Member said:

Same!

posted 11 days ago
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