Fibromyalgia

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Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

posted about 3 years ago by A MyFibroTeam User
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So many times! Ive had so many different jobs a lot which were good but my fibro keeps getting in the way. If i were to give my full application I… read more

posted 18 days ago

Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

posted over 2 years ago by A MyFibroTeam User
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I also have many issues trying to sleep at night. I take a Gravol with my sleeping pill to make me drowsy but I still only get between 2-3 hours in… read more

posted about 1 month ago

Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

posted over 2 years ago by A MyFibroTeam User
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Peeps check out Leaky Gut and Bone broth. My pain levels gone from 120/100 to 30/100.... also looked at organic foods...have so many sensitivities that… read more

posted 12 days ago

Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

posted over 2 years ago by A MyFibroTeam User
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Loving the Mindwise and the Ningxia Red and Ningxia Nitro. They work so well together for clarity, energy and mental acuity! I would not go without them… read more

posted about 1 year ago

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

posted almost 3 years ago by A MyFibroTeam User
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I know what you mean but apart from a sarcastic answer there’s not much to say

posted about 1 month ago

Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!

posted about 3 years ago by A MyFibroTeam User
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Absolutely and it's so awful, feels like I'm getting Alzheimer's sometimes. I used to work with numbers on a daily basis and when mine is so bad I can't… read more

posted over 1 year ago

Why is my Fibro Pain Getting Worse so Fast?

When I was first diagnosed, I was exhausted and achey all over. Mostly in my back and knees and it would wax and wane. Now the pain has spread through my entire body including my wrists, ankles and feet. Every morning when I wake up I dread getting out of bed because I am so stiff and sore, my pain level is a 10. My back, shoulders and neck are extremely sore and tender ALL the time, and I need to rest with my heating pad a few times throughout the day. This was not the… read more

posted over 2 years ago by A MyFibroTeam User
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This is so sad and the doctors I’ve seen in the past all have said that FM isn’t a progressive disease, I would like to say they’re wrong! Mine is so… read more

posted 7 days ago

fibro fog?

Is there anything u can do to help fibro fog?

posted over 2 years ago by A MyFibroTeam User
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My response if it gets that my colouring in doesn't help I'd tell them "I am having a blonde moment" those that know me is that it is probably true lol!… read more

posted almost 2 years ago

B12 and or foliate deficiency

Just wondering how many of you have been diagnosed with either or both ..... and was it before or after your fibro diagnosis?

Also, any of you who haven't been tested .... are you curious to whether you have it and will you consider asking your doctor for a test?

Huggs everyone :)

posted over 2 years ago by A MyFibroTeam User
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@A MyFibroTeam User I had iron infusions a few years ago and the best advice I have for you is to have them use one of your bigger veins. I ended up… read more

posted about 1 year ago

Has Anyone Else Developed A Fear Or Dread Of The Nighttime ?

I've wondered about this issue for sometime now but didn't know how to word it so it makes sense. I know we all have trouble with our sleeping at night.
Finally I thought, " just say it like it is" so here goes. Every day when I realize that dusk is coming,.I start to actually get anxious and dread seeing the darkness come. This wasn't too bad in my early diagnosis but in the last year or so it's turning into a fearful, anxiety filled drama. I know I'm… read more

posted about 2 years ago by A MyFibroTeam User
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@A MyFibroTeam User oh the lady's on this site oh and men will always bring a person up and or make you laugh and Send blessings and GODS MIGHTY GLORY… read more

posted about 1 month ago
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