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Full time employment and fibro

just for my own sanity... How many of you lovely people have lost a job or more than one due to your fibro symptoms?

posted over 3 years ago by A MyFibroTeam User

well ladies and gentlemen I didn't lose my job but I bowed out I was going in and out of depression I have no idea where that came from burning the… read more

posted 12 days ago
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Sleeping all day

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

posted over 2 years ago by A MyFibroTeam User

@A MyFibroTeam User yes I have insomnia for more than 7 yrs and had had 3 or 4 sleep apnea test done but none have helped me sleep better. I have tried… read more

posted 2 months ago
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Describe what a Flare Up is to you ?

We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more

posted over 2 years ago by A MyFibroTeam User

I also have all the symptoms you all claim above and my urthrea also hurts so I don't know if I coming down with a bladder infection or not until my… read more

posted about 7 hours ago
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Foggy brain

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

posted almost 3 years ago by A MyFibroTeam User


I understand. If you are ever lonely, you still at least have this site with others to chat with. Always remember that Our Heavenly Father, Jesus… read more

edited, originally posted 2 months ago
3 medium

How do you respond to insensitive remarks?

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

posted about 3 years ago by A MyFibroTeam User

I know what you mean but apart from a sarcastic answer there’s not much to say

posted 4 months ago
3 medium

Does anyone experience the Fibro Fog so intense that you can hardly remember your name sometimes?

Sometimes I just seem to forget things or do silly things, like putting washing in the dustbin, and cannot recall doing it at all. It is soooo frustrating!

posted over 3 years ago by A MyFibroTeam User

Yes this is a huge frustration of having Fibro,forgetting a l lot on a daily basis.There is a test done by a Psychologist,that can prove this is… read more

posted 1 day ago
4 medium

Why is my Fibro Pain Getting Worse so Fast?

When I was first diagnosed, I was exhausted and achey all over. Mostly in my back and knees and it would wax and wane. Now the pain has spread through my entire body including my wrists, ankles and feet. Every morning when I wake up I dread getting out of bed because I am so stiff and sore, my pain level is a 10. My back, shoulders and neck are extremely sore and tender ALL the time, and I need to rest with my heating pad a few times throughout the day. This was not the… read more

posted over 2 years ago by A MyFibroTeam User

For me..if I have a lot of stress,,I feel like I have been beaten head to toe,,also if I keep overdoing it ,in a day, and do not stop ,and rest,,too… read more

posted 1 day ago
6 medium

fibro fog?

Is there anything u can do to help fibro fog?

posted over 2 years ago by A MyFibroTeam User

I have started to use the term "brain fart". Most people understand it.

posted 15 days ago
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B12 and or foliate deficiency

Just wondering how many of you have been diagnosed with either or both ..... and was it before or after your fibro diagnosis?

Also, any of you who haven't been tested .... are you curious to whether you have it and will you consider asking your doctor for a test?

Huggs everyone :)

posted over 2 years ago by A MyFibroTeam User

@A MyFibroTeam User I had iron infusions a few years ago and the best advice I have for you is to have them use one of your bigger veins. I ended up… read more

posted over 1 year ago
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Has Anyone Else Developed A Fear Or Dread Of The Nighttime ?

I've wondered about this issue for sometime now but didn't know how to word it so it makes sense. I know we all have trouble with our sleeping at night.
Finally I thought, " just say it like it is" so here goes. Every day when I realize that dusk is coming,.I start to actually get anxious and dread seeing the darkness come. This wasn't too bad in my early diagnosis but in the last year or so it's turning into a fearful, anxiety filled drama. I know I'm… read more

posted over 2 years ago by A MyFibroTeam User

OsipowMichele, its awful the things we go through and to the rest of the world it's just "oh you didn't sleep well last night, no big deal"but try… read more

posted 17 days ago
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