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Im reletively newly diagnosed and im still coming to terms that ill be in pain for the rest of my life. Every Christmas, birthday, anniversary, my wedding day, every single day forever. I cant come to terms with that. This illness has taken so much from me. I can't walk more than 20m without some sort of mobility aid, i can barely leave bed most days. I don't think i can do this. I can't even go and celebrate my friends achievements without being bed ridden.
You live one moment at a time sweetheart, ❣️Become aware of how your mind can tell you, you are in pain you are in pain!
I sit and ask myself 'what is wrong at this very moment?'
Nothing, I'm sitting in a beautiful flat (apartment) I have soft clean sheets with lots of soft pillows. I have heated pads food a beautiful veiw. The sky which in different languages mean heaven...🌸
My art work photography friends, family many many things to be grateful for. 🥀Even walking in the rain 🍂audiobooks.
Meditation 🙏🏻lauren ostrowski fenton. She does great body scans. Really help relax you.
Music. Learning to work with the breath to help ease pain.
You are not defined by your pain you are the boss. Sending love Peps ❣️🌻🌼
Believe me Catherine, I know and feel exactly what you have expressed. I think there is a moment of profound grief that we all experience. I still have those moments. You are human and it's ok to feel however you feel but if you have not heard this before you can learn the best ways to manage this disorder. It doesn't mean it will go away but you have the power and can influence it. Your journey will now become what are your best tools.Everyone is different and responds to things differently. I didn't think I could do it either but almost 30 years later,i am still trying, I am still learning. You will find your resilience and you will continue to move forward. Take your time. Step by step. I'm pulling for you. I've been there. I'm still going through it. You will be able to do it 🥰❤️☯️
Well said guys. Ian, you are so right- the mental aspect after any diagnosis can be treacherous.
Welcome @A MyFibroTeam Member
So glad you’ve joined us and are here expressing your feelings. It’s so important. 🤗💛
I find acceptance can be a bit of a practice. Something you may achieve and find yourself needing to surrender all over again. It looks different for all of us and it’s all okay.
Lean on the group and those you love and trust. Fill your days with what brings you joy.
In time, you’ll build your arsenal of tools and skills that help you to feel your best. And we’ll be here to support you along your way.
Ian also mentioned remission, I’ve been through many stretches myself. 🙃
Sending extra love to you. We’re here for you. 💛💛💛
You look young so maybe during your lifetime they will find a cure for fibromyalgia. So maybe you will get to live pain free after all. I hope so.
Hi Catherine, I would say straight after diagnosis the mental anguish is probably the worst. It might not always feel like it, but you adapt and learn to live with it. This condition does have a habit of changing. So you may even go into remission for a while, and if so, those good days are the ones you cherish.
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