Im struggling with understanding how I can continue my life the way I feel. I can only work part time and my doctor says i should do sat mon and wed so I have a day break to crash (which I do crash) but its just work exhaustion work exhaustion no time for my life and my income is low. I dont understand what I can do to help the symptoms what flars it up and what I really should be doing. To be honest im lost and really upset. If anyone has advice please do tell!
Hi Sophia. This is a tough one I do agree that you are probably grieving your old life . I'm still going through it nearly 30 years after I first started receiving very odd symptoms. I didn't get properly diagnosed until I was many years into fibromyalgia. The hardest thing for me as well as the best thing for me was I was a former athlete. I played all the time. So it was hard for me to eventually accept I couldn't do it and recover anymore but I still had that former athlete in me that keeps trying and keeps hoping I can do better because I use to do it as an athlete. Now that I have aged I've learned to accept the limitations. It does not make it easier but you can channel yourself into something more suitable to your condition and you can still be full of joy and purpose.
You eventually find new ways and adapt. I morphed into mindfulness and that has helped. It allows me to be grateful for what was and what can still be. know that you always have the power to change things.
Take special care๐๐๐โฏ๏ธ
Like it says above, keep a journal, that way you can see the patterns in what foods, activities, weather, etc.....or whatever causes your fibro to flare up and you will know what to avoid
I feel like this too. It is a really hopeless feeling. Iโve been trying to think of some short term goals and rewards to focus on to help my dopamine as so often it feels like Iโm treading water and getting no where.
Iโm bringing my physio and psychologist in on this too so they can help me come up with something realistic.
There are so many questions and so few answers sometimes. Focusing on what you CAN do and looking for silver linings in the situation helps with my mental health which drops into my boots at times.
Sending lots of love. Xxxxxxx
Hi Sophia I am so sorry that you feel so lost at the moment you are probably facing a grieving process for the old you and your old life we all go through it just pace yourself and see if you can get any help with raising your income because money problems always raise our stress levels and cause more pain over here we have benefits which can supplement our salary depending on how much you earn I don't know what type of work you do but I have just watched a video that talks about taking rests setting a timer and doing stretching or taking a short walk or just doing nothing and concentrating on your breathing then returning back to your work hope that helps โฅ๏ธ
Feeling lost and overwhelmed when fibromyalgia takes over your life is something so many people with fibro deeply understand. The cycle of work-crash-work-crash leaves almost no room to just *be you*, and that's genuinely exhausting on every level โ physically and emotionally.
You are absolutely not alone in this feeling Show Full Answer