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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was diagnosed with Fibro in 25, also with bronchiectasis in lungs. I have PTSD, anxiety, depression, panic attacks with agoraphobia. I am going in for EMG soon as joints and nerves really hurt last 3 weeks. I suffer from ideopathic hypersomnia and sleep apnea along with weekly migraines. I am married with twins age 8, and miss being able to get up and do everything. Every day is different and I am not sure I can sustain work which is hard to accept since I am in middle of Masters Degree. My… read more

April 30
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MyFibroTeam

First, it's worth acknowledging how much you're carrying right now — managing fibromyalgia alongside so many other challenges, while raising twins and pursuing a Master's degree, takes incredible strength. The grief of stepping back from a leadership career is real and valid.

Regarding SSDI, being 100% service-connected Show Full Answer

First, it's worth acknowledging how much you're carrying right now — managing fibromyalgia alongside so many other challenges, while raising twins and pursuing a Master's degree, takes incredible strength. The grief of stepping back from a leadership career is real and valid.

Regarding SSDI, being 100% service-connected through the VA is a significant factor in your favor. While VA disability and SSDI are separate programs, your VA rating can strongly support your SSDI claim by demonstrating documented, severe functional limitations. Here are some key tips others have found helpful when navigating SSDI with fibromyalgia:

- Hire a disability attorney — many work on contingency (no upfront cost) and know how to avoid common pitfalls
- Document everything — keep detailed records of how symptoms affect your daily functioning, not just diagnosis names
- Get letters from all treating providers supporting your inability to sustain full-time work
- Track bad days — a symptom diary showing the unpredictability of fibro is powerful evidence
- Don't downplay symptoms during evaluations — be honest about your worst days, not your best

Your upcoming EMG results could also strengthen your case significantly. One MyFibroTeam member who navigated disability after a long nursing career noted that having a lawyer who understood the legal complexities of disability claims made a meaningful difference in their outcome.

The road can feel long, but many members have successfully obtained benefits. You are not alone in this.

April 30

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