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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Newcastle, AU
April 21
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Answer Summary

Members responded openly to the question about the three worst things about having fibromyalgia, with pain, fatigue, and isolation standing... Read more

Members responded openly to the question about the three worst things about having fibromyalgia, with pain, fatigue, and isolation standing out as the most common answers shared across the thread. Several members described the grief of losing independence and the heartbreak of feeling misunderstood by family, friends, and even doctors who don't truly listen. A recurring theme was the emotional weight of managing a condition that cannot be cured, only managed, alongside the comfort of finding a community that truly understands the struggle.

A MyFibroTeam Member

Hello Aussie, my three things would be pain, fatigue and the feeling of dealing with fibro alone...

April 22
A MyFibroTeam Member

Having fibro for over 4 decades has really forced me to get to know what works for me and what doesn't.

I'm reminded of Dolly Parson's line in Steel Magnolias, "That which doesn't kill us, makes us stronger".

April 23
A MyFibroTeam Member

The complete none understanding of those who are family and friends..
The complete none understanding of doctors.
Having to go over and over the same stuff because no one understands 🫠

April 22
A MyFibroTeam Member

Increasing pain with each decade…Insomnia…fatique

April 22
A MyFibroTeam Member

Pain, insomnia, IBS.

For me, it's tremendously challenging to be all alone with no one to help me.

April 21

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