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started a list of symptoms a decade ago, long before any were recognized as FMS related.
https://www.invisibleillnesses.org.au/i
nfo-resources/the-ridiculously-long-list

https://www.invisibleillnesses.org.au/i
March 29
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Reactions
A MyFibroTeam Member

So I have symptoms from every category from cardio to bronchial, cognitive, gastro you name it I have it, or have had it!! 😱

March 29
MyFibroTeam

Do others experience extensive fibromyalgia symptoms like those on long symptom lists?

Yes, many MyFibroTeam members experience a wide range of symptoms. Fibromyalgia comes with hundreds of possible symptom combinations, many of which are invisible to others.

The most commonly reported symptoms among members include:

- Show Full Answer

Do others experience extensive fibromyalgia symptoms like those on long symptom lists?

Yes, many MyFibroTeam members experience a wide range of symptoms. Fibromyalgia comes with hundreds of possible symptom combinations, many of which are invisible to others.

The most commonly reported symptoms among members include:

- Muscle pain (affecting over 95,000 members)
- Fatigue (nearly 89,000 members)
- Headaches (46,000 members)
- Difficulty sleeping (over 40,000 members)
- Excessive sweating
- Brain fog
- Body aches

Members often describe how these symptoms overlap and fluctuate. One member noted that fatigue can go "up then down" unpredictably, while others experience muscle cramps alongside widespread pain that makes even sleep difficult.

Many members started tracking symptoms before they were officially recognized as fibromyalgia-related, just like you did. The challenge is that much of what you're experiencing remains hidden from others, making it a largely misunderstood condition.

If your symptoms are affecting your quality of life, talking with a rheumatologist or healthcare provider about pain relief and management strategies can help.

March 29
A MyFibroTeam Member

Yep, I have a long list too.

April 1
A MyFibroTeam Member

Zoe’s, I have a lot of these symptoms too🤗. I do believe there are subsets of fibromyalgia. LIke a cluster of symptoms, particular to each subset. You can see it on here ,when you read peoples stories. For example, I have fibromyalgia and chronic fatigue, but my fibromyalgia pain is worse than the chronic fatigue. Others will have the opposite of that. Also I have several autoimmune diseases, since I’ve gotten older and I have arthritis, etc. etc. etc..

March 29 (edited)

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