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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Cortland, NY

Ugh 😩

March 2
 · 
Reactions
A MyFibroTeam Member

Great advice from MFT above!

March 2
MyFibroTeam

How can you cope with being bedridden with fibromyalgia and manage daily life when too sick to work?

Being bedridden with fibromyalgia is incredibly challenging, but there are strategies that can help you manage day-to-day life even when you're too exhausted to work.

Focus on What You Can Control

Start by identifying Show Full Answer

How can you cope with being bedridden with fibromyalgia and manage daily life when too sick to work?

Being bedridden with fibromyalgia is incredibly challenging, but there are strategies that can help you manage day-to-day life even when you're too exhausted to work.

Focus on What You Can Control

Start by identifying what's within your control and what isn't. Make a list of daily tasks and honestly assess which ones are necessary and which can wait. Cross out things you can't control, and for the rest, ask yourself if they need to be done today or if someone else could help.

Be Kind to Yourself

A MyFibroTeam member shared about learning to protect themselves from emotional disaster during a flare by being kind to themselves. This means accepting that some days you might only be able to nap and rest, and that's okay. Your body needs that recovery time.

Create Simple Routines

Even small routines can help. Try to wake up and go to bed at consistent times when possible. Listen to your body about when it needs rest - taking naps isn't lazy, it's necessary self-care.

Use Tools to Help Your Brain

Keep lists and write important things down. One member said, "I make lists --- those help a lot. I also keep a journal about how I'm feeling and anything new." This helps manage brain fog and keeps you organized without draining mental energy. Work With Your Healthcare Team

Talk to your doctor about medications that might help with sleep quality and fatigue. Some members have found relief with sleep medications like Elavil, which helped reduce their fatigue significantly. There are also supplements that can help with sleep at night and staying alert during the day, but these should be taken under medical supervision.

Make Your Environment Work for You

Use ergonomic supports like pillows, comfortable mattresses, and supportive chairs. Arrange things so you don't have to move as much or hold uncomfortable positions that increase fatigue.

Reduce Stress Where Possible

Learn to say no to requests that drain your limited energy. Prioritize what's truly important to you. Some people find meditation, laughter, or connecting with friends helpful for stress management.

Consider Professional Support

If stress becomes overwhelming and interferes with daily life, reaching out to a counselor or therapist can provide professional tools specifically for managing life with fibromyalgia.

Remember, taking care of yourself isn't selfish - it's necessary. You'll be better able to handle what you can when you honor what your body needs.

March 2
A MyFibroTeam Member

Yes mw tok so many triggers steady ans temperature

March 3 (edited)
A MyFibroTeam Member

Praying for you that you can find a little relief, peace.

March 2

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