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I was told today from my neurologist there was nothing else he could do for me after leaving me in more pain after having me raise my hands use his metal instruments on me and etc.

May 5, 2025
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Answer Summary

Members shared their frustration and disappointment after being told by neurologists that nothing more could be done for their fibromyalgia,... Read more

Members shared their frustration and disappointment after being told by neurologists that nothing more could be done for their fibromyalgia, with many describing being dismissed or discharged back to primary care doctors with little support or guidance. Several members offered practical strategies including seeking out pain management specialists, researching doctors who specialize in fibromyalgia, trying cognitive behavioral therapy for chronic pain, and exploring resources like Dr. Teitelbaum's books to identify underlying causes rather than just masking symptoms with medications. A recurring theme was the importance of self-advocacy, finding ways to stay comfortable through heat, gentle movement, and healthy habits, and the shared frustration of feeling unheard by medical professionals who seem unwilling or unable to provide meaningful help.

A MyFibroTeam Member

CBT - cognitive behavioural Therapy is what my neurologist recommended. It assist more with mental health and physical though…

May 6, 2025
A MyFibroTeam Member

That’s hard! If you can I’d seek a different neurologist. Although, I realize it isn’t always that easy.

Echoing Ian here…
I know it makes some feel like the doctors are saying the pain is in our heads, but CBT is so wonderful when living with chronic pain of any kind.

May 6, 2025 (edited)
A MyFibroTeam Member

Yes I’ve been told the same , there’s nothing they can do for me. Cheerikee61 it boils down to exceptance and suffering unfortunately. You have to be your own advocate in finding ways and things that make you comfortable. Perhaps heat , warm baths , eat healthy and just try to keep moving even if it’s light exercise at home . There are utube videos for fibro exercises. I’m extremely sick and in alot of pain myself. Medications for fibromyalgia are supposed to deliver but they really do nothing . I wish you well I know how tuff this syndrome is…. It’s turned me into a total stranger..

May 5, 2025
A MyFibroTeam Member

Yes, Happy Mother's Day to all of the women too!

May 9, 2025
A MyFibroTeam Member

No one i see even asks how i feel. My rheumatologist doesn't care, has little to offer me. I just go there for my Prolia shots. Around here, you are better off not talking about it.

May 6, 2025

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