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A MyFibroTeam Member asked a question πŸ’­
Huddersfield, UK
July 23, 2024
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Answer Summary

Members connected over the difficult diagnosis of adenomyosis, with several sharing their own experiences of living with adenomyosis,... Read more

Members connected over the difficult diagnosis of adenomyosis, with several sharing their own experiences of living with adenomyosis, endometriosis, or both, describing symptoms like severe pelvic pain, heavy bleeding, and pain during intercourse that sometimes required hospitalization or hysterectomy. Many members offered practical support by explaining what adenomyosis is (when the uterine lining grows into the muscle wall), sharing that pregabalin helped manage spasms and contractions, and discussing treatment options including hormones and surgery with mixed results. A recurring theme was solidarity and validation, with members emphasizing how painful and isolating these conditions can be while offering emotional support, prayers, and encouragement to anyone navigating a new diagnosis or treatment decisions.

A MyFibroTeam Member

I am so sorry to hear that you have a new diagnosis. I haven’t heard of that. I will look it up. I hope that now you have a diagnosis, that you can find some relief, dear friend πŸ€—πŸ™πŸ»πŸ’•πŸ¦‹

July 23, 2024 (edited)
A MyFibroTeam Member

I have endometriosis diagnosed and operated on in 2010 another op in 2013 for a cyst then a growth removed last December and diagnosed with Adenomyosis ☹️

August 6, 2024
A MyFibroTeam Member

@A MyFibroTeam Member,
I've never heard of it before until was diagnosed in July.

Adenomyosis is a condition where the lining of the womb (uterus) starts growing into the muscle in the wall of the womb.

'Some symptoms of adenomyosis affect your periods, such as:

painful periods
heavy bleeding during your period
Other symptoms can happen any time in your menstrual cycle, such as:

pelvic pain (pain in the lower part of your tummy)
bloating, heaviness or fullness in your tummy (abdomen)
pain during sex.

If you live in the UK, you can read more on the NHS website.

August 6, 2024 (edited)
A MyFibroTeam Member

Not trying to be a jerk-
Never heard of andemyosis and googling gives me not so good answers.

If you don't mind me asking that is.

August 5, 2024
A MyFibroTeam Member

Never diagnosed but have some of symptoms. Always had heavy periods, pain in abdomin and pain during sex as well. God bless!

July 23, 2024

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spencerian@hotmail.co.uk