I don't have the problem but there is a holistic type place here in Long Beach that talks about it and Dr Sklar treats it:
Hope this helps some.
www.sklarcenter.com

Home Sklar Center

https://www.sklarcenter.com

Thank you I will make sure to read it.

That sounds awful
I don't have any burning in my mouth but definitely problems with my jaw and grinding my teeth when going thru a flare up.

I hope you find an answer to it or at least some relief.

Mad love and gentle hugs!