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Peripheral Neuropathy
A MyFibroTeam Member asked a question 💭

Does anyone have peripheral neuropathy in their lower legs & feet without diabetes? I'd love to know your symptoms and experience as I think I've developed it too 😕

posted March 15
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A MyFibroTeam Member

Lisa I have tried compression socks and they make me feel like my feet and legs are being squeezed to death. I know that's not what you would like to hear but it may be different with you. I can't stand to wear regular socks. They just feel too confining. My husband swears by them. He had a blood clot last year and had to wear them.

posted March 21
A MyFibroTeam Member

Yep, I have tarsal tunnel syndrome in both feet. Its a trapped nerve on the insides of my ankles and feet. It causes tingling and stabbing pain which can be severe and can mimic diabetic or idiopathic neuropathy. Took me 20 years to get it diagnosed properly and fixed (surgically). In the end the three surgeries and years of recovery and stress are what triggered fibromyalgia. Compression socks are painful if you have tarsal tunnel because it presses on the nerves and irritates them.

posted March 20 (edited)
A MyFibroTeam Member

I have symptoms like this but haven't done any testing yet. Stepped on a nail and had frostbite. Was so cold hiking to a town and my legs nearly frozen completely stiff and lost all feeling. Never got treated for the nail, almost went right though my foot and can see a bone that is out of place.
I get sever pain in my feet and legs, pins and needles, swelling, burning, intense muscle spasms. Sometimes it's so bad I need crutches or a wheelchair.
Also this weird sensation of water dripping and bruises easy.

posted March 19
A MyFibroTeam Member

@A MyFibroTeam Member that sounds awful, I'm so sorry that you are dealing with these symptoms. I get discoloration and blood pooling in my lower legs and feet. I get pin prick sensations in my feet, along with stabbing pains, shocks, and generalized pain. I've experienced feeling as though my feet are wet/water is pouring on them. I know that must seem so strange but I've heard of others having that happen to them, too. Maybe my brain is trying to make sense of damaged connections/damaged information from nerves?
I think dysautonomia/problems with regulating autonomic functioning plays a big part in what I'm dealing with. I struggle with temperature regulation but mostly with heat.
(With erythromelalgia specifically, parts of my feet (or other body parts) will become bright red and the pain is burning. When these flare ups occur, my affected body parts radiate heat.)
I have Raynaud's which impacts my hands, mostly my fingers, so I get discoloration with that and pain, too.
Don't hesitate to ask me more questions if anything I have written seems as though it could be helpful, ok?

posted March 17
A MyFibroTeam Member

Hi Lisa, I’ve seen many on here that do have that in lower legs and feet, without diabetes.
Hope someone that does will share here. Not sure what my achiness is in my calves. My feet pain is from osteoarthritis. I use Shikai cbd lotion, 1500 mg on legs.

posted March 15

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