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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Kamloops, BC

My naturopath has recommended I try it. I would love to hear from some people who have tried it and what your experience has been with it. Has it helped with your fibromyalgia symptoms? Have you had any negative side effects?

June 5, 2023
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Reactions
A MyFibroTeam Member

I have recently started taking a low dose. No side effects as far as I can tell,yet! Also no improvment ... that being said , i have dealt with pain and fatique for so long and I am just learning all over again to pay attention to my body so Im really not certain. So hard to explain that to people, hope it makes a bit of sense. My pain doctor wants to up the dosage a tad in a couple months, will let you know how that goes!

June 5, 2023
A MyFibroTeam Member

I was on LDN for about 3 months at the beginning of the year. I didn't notice any improvement so I stopped taking it. I also had to pay for it out of pocket as most insurance doesn't cover it. I couldn't afford it and since it didn't help me that's just one less expense.

I know everyone reacts differently. I hope if you decide to try it that it helps you.

August 1, 2023
A MyFibroTeam Member

MJ2, I haven't tried any other meds. So far I've been able to manage my fibro through diet and using natural supplements. I guess I will just have to try it, to know how my body will react.

June 5, 2023
A MyFibroTeam Member

Thanks Kara! I'm glad to hear you at least haven't had negative side effects. Hopefully you get some relief soon!

June 5, 2023
A MyFibroTeam Member

I have never heard of it. However after seeing what MJ2 has dealt with in taking it I would be somewhat hesitant to use. I HOPE they come up with something soon for FIBROMYALGIA I dont know how much more I can take.

June 5, 2023

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