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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Two previous GPs have said I had seborrheic dermatitis - or dandruff. It is far worse than that, but they just shrug their shoulders and give me something to dry the scalp even more, and that is not the solution I don't think
I have Sjogren's Syndrome, as well as Fibromyalgia, and my present GP thinks it is more associated with Sjogrens. But they don't have any answers, and it is driving me crazy
Have tried so many different shampoos and conditioners as well as moisturisers and natural oils… read more

March 1, 2023
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Answer Summary

Members connected over the frustrating challenge of managing itchy, scaly scalp conditions linked to autoimmune diseases like Sjögren's... Read more

Members connected over the frustrating challenge of managing itchy, scaly scalp conditions linked to autoimmune diseases like Sjögren's syndrome, psoriasis, and fibromyalgia, with many sharing that standard dandruff treatments often made the problem worse rather than better. Several members found relief through specific products, including DermaKB scalp detoxifier (a film-removing treatment used sparingly that one member reported lasted over three years per bottle), Vanicream dandruff shampoo with zinc pyrithione, tea tree oil, and strategies like washing hair more frequently, avoiding oils, and never sleeping with wet hair. A recurring theme was the importance of persistence and self-advocacy when doctors offered limited solutions, with members celebrating breakthroughs after months or years of trial and error, including one member who joyfully reported their scalp was finally clear after following a community recommendation.

A MyFibroTeam Member

Mine was at first all over my scalp. It hasn't entirely disappeared. Small patches show up occasionally and I treat those. The bottle I have is 16 ounces.

I had a Twiggy cut in the summer of 1967. That's extremely short. I find my hair much easier to look after if it's somewhat long. I don't get split ends, even when it reaches my knees (70s). It grows very fast.

March 4, 2023
A MyFibroTeam Member

My friends I have answered this before but here goes. Several years ago I suddenly got dandruff and raised itchy sores on my scalp. After trying an extremely expensive prescription shampoo, then a doctor recommended OTC dandruff shampoo I saw an add on the internet for a scalp detoxifier. It removes a film on the scalp. I started using it and the itching was quickly reduced and the dandruff was totally gone. It's called DermaKB scalp detoxifier and only available online. Some of the itchy patches are not entirely gone and I still use it every couple of weeks. Last week I started using the second bottle. It lasts a very long time. No affiliation, just a very happy customer.

March 2, 2023
A MyFibroTeam Member

Hi Lynne, Have to thank you again for suggesting the DermaKB. I tried to buy it as suggested but it was out of stock. Covid? Anyway Amazon also came up with another suggestion that I eventually bought which was supposed to be similar to the DermaKB. Have used it now off and on for some months and can now report that my scalp is mainly clear!!!!!! Only an occasional spot which I quickly pounce on and treat, though I give my entire scalp a complete going over about once a fortnight still. I do not want this problem again. Great stuff.

June 24, 2023
A MyFibroTeam Member

Don't worry about off topic conversations - that at least shows you still have a memory. You must be pretty good with the needle.

March 6, 2023
A MyFibroTeam Member

Hi Lynnecarol, Thank you for your help. I have spent some time online researching this and could only buy it overseas. Wanted actually to buy the 'starter kit' but that was out of stock everywhere, so ended up purchasing a medium sized bottle from some place in England I think it was - actually via Amazon. Costing a small fortune but if it works as well as they say it will, and as you have evidenced, it would be money well spent. I also learned a lot about a scalp condition that I can't pronounce or spell, which I didn't know about, so that's an added bonus. Have had this jolly problem in varying stages for some years now, and am so fed up with it, and think it high time it got fixed for good.
Thanks again for the help given by you and Anneelliott but both products are out of stock here and only able to purchase online or under an entirely different name, which I wasn't game to try.

March 2, 2023

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