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A MyFibroTeam Member asked a question πŸ’­
Indianapolis, IN
January 13, 2023
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Answer Summary

Members reflected on the often long and painful journey to diagnosis, sharing that their first signs included constant exhaustion, widespread... Read more

Members reflected on the often long and painful journey to diagnosis, sharing that their first signs included constant exhaustion, widespread pain, and symptoms that were frequently dismissed by multiple doctors before finally receiving answers years or even decades later. Several members described early experiences such as fainting spells, severe menstrual cramps, childhood fatigue so intense they avoided activities other kids enjoyed, and misdiagnoses like growing pains or conditions such as ankylosing spondylitis that were later correctly identified as fibromyalgia. A recurring theme was the frustration of knowing something was deeply wrong while facing medical dismissal, with many waiting 10 to 20 years for proper diagnosis, highlighting the importance of persistence and finding doctors who truly listen.

A MyFibroTeam Member

I was always tired, no energy and hurt. Went to about 4 or 5 different doctors that said there was nothing wrong. Then I went to a Rheumatologist, after 13 tubes of blood. He said I had Fibro. I have been dealing with this for 15 to 20 years. It really sucks...πŸ™‚πŸ™‚πŸ™‚

January 13, 2023
A MyFibroTeam Member

I was tired. Random pains that would stick around and poof be gone. Achy for no reason. Random fatigue and nausea. My DR did blood work and with a ton of questions checked trigger points. All if my were positive. Felt like he punched me in each one. Some of them were still hurting days later.

January 19, 2023
A MyFibroTeam Member

Prior to elementary school I always wanted to be the baby when I played house with my friends. That way I could lie down.

At age 8 I was put on sleeping pills. Shortly after I was diagnosed with growing pains. I fainted frequently. All of these happened before I turned 12.

I was finally diagnosed at age 51.

January 14, 2023
A MyFibroTeam Member

Also as a young girl my monthly was horrendous. I could never get comfortable and cramps were so bad

January 14, 2023
A MyFibroTeam Member

Jr high had mono and pnuemonia. Very sick. I can remember girls asking me to do stuff and id be thinking as their asking i dont want to. Ill go but i know i wont enjoy it. I was always tired and always hurt. Other girls would be dancing around and id never want to. I took carol koontz majorettes and we marched in parades. Her girl that taught constantly made fun of me in front of me and class. I told mom once but then she tried talking to Carol and that girl got super mad and it was worse for me. I loved to dance but mostly did in my room in privacy and so i could rest when needed to.

January 14, 2023

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