Pain causes your body to go into the fight or flight mode and it can be exhausting. Your body is always on alert which causes tension, pain, fatigue, etc. I get much more tired than I used to. Mornings are the best for me...that's when I try to get things done. Many afternoons I am resting or sleeping. I do try to cook dinner every night but sometimes that goes by the wayside. My husband is supportive so its all good. Do you feel worse in the winter or is it all year round? I am worse with fatigue in the winter because of SAD (seasonal affective disorder) and use a light box to help with that. I wish I had answers for you...but the truth is we have to find our own way. Do you see a doctor? Maybe a little caeffine would help. Even tea has caeffine in it so that might help. Right now I am having a cup of coffee, which is usually a no-no for me due to my stomach issues but I had a very painful night and I have some things I have to do today so I can use the extra push. I hope you can find answers that work for you. Sending Christmas blessings....Donna

The pain never goes away, but it does vary in intensity and location. Sometimes it even varies in sensation. I haven't been exhausted to somnolence in quite some time, but I am "wired and tired" when I only get 6 hours of sleep, which is my norm in my current flare. Chronic pain always leads to fatigue and sleep problems that have to be addressed. The most you can do for yourself is get to a non-flare state by modifying your activities and stressors. Best wishes. 🎭

Absolutely feel rhe same. Ive been fighting this for years. After awhile you just learn to ignore the pain and keep going but some days theres no ignoring it. Whats sad is you never know when those days will hit you

If you're getting dizzy and nauseated you need to ask your doctor to revamp your pain management program. If you think you could benefit from an anti-anxiety agent, you could ask for that also.
Unfortunately, family and friends may never understand because of the stop-and-go nature of this disease (our abilities to function may change from day to day).

The pain is constant. There is no let up. The painkillers are making my stomach hurt so much and I feel nauseous and sick. A lot of dizzy spells. My family dont understand and think I'm making it up. I have no support from them at all which is very disheartening and adds to the pain and I am on edge and anxious all the time.
Sorry for having a moan.