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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Corvallis, OR

I went to my doctor today and I literally screamed as I was driving away. The bp issue? Let's tack on a 3rd prescription. Low potassium? Hey, here's another pill. The debilitating pain that I'm feeling? Ah, well, there's nothing we can do for that. Try physical therapy.

GAH!

That can't be right, can it? I get the part about not letting the parts freeze up and that motion is the only way to come thru these things. But there is NOTHING to help alleviate the pain in the meantime?

For over a… read more

December 9, 2022
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Answer Summary

Members rallied around the question of managing fibromyalgia flare-ups with deep empathy and a wealth of practical suggestions beyond what... Read more

Members rallied around the question of managing fibromyalgia flare-ups with deep empathy and a wealth of practical suggestions beyond what doctors typically offer. Several members shared strategies that have helped them through severe flares, including Epsom salt baths, topical treatments like arnica gel and lidocaine patches, heat therapy, CBD products, Toradol injections, compounded creams, Kratom, short-term steroids, and supplements like curcumin and CoQ10. A recurring theme was the importance of self-advocacy, rest, hydration, gentle movement, and the understanding that finding relief often requires patient trial and error when medical professionals seem to have limited answers for fibromyalgia pain.

A MyFibroTeam Member

Try the CBD with low TCH to see if it helps with the pain. Otherwise, try asking the MD for Tramadol or a muscle relaxant. Also try the topicals, like foaming magnesium sulfate, arnica gel, luminas patches, lidocaine patches.
Supplements can be helpful also, like curcumin, CoQ10, B and D vitamins.
When you're not working, use heat and massage. Homedics has a cordless shiatsu back massage device ( fits in a chair), I just got at Costco, that seems to help my spine problems. It's hard to recommend when I don't know where you are having the most pain. Most benefit from aqua therapy. Infrared heating pads are also helpful, but pricey. You will find what's right for you through trial and error, just don't give up.
Become your own advocate, you can't always depend on the medical profession, especially with Fibro.

December 9, 2022
A MyFibroTeam Member

My last visit to the doctor, she suggested trying a compound and it actually helps. It contains cyclobenzaprine1%, gabapentin 6%, ketoprofen5%, lidocaine1%, prilocain1%. From a company called injury scripts. Also they have prices for the uninsured. 90gms for around 33$ after all is said and done!?

December 11, 2022
A MyFibroTeam Member

My doctor gives me steroids to help with my bad flare ups. I have 5 kids,my youngest being 4 and I'm a pediatric nurse so I can't just stay home and rest unfortunately. I also started on Wellbutrin after 10 years of being on the same meds ( Gabapentin and Flexeril) My doctor stopped prescribing pain meds last year so I started using Kratom though I do know it is not legal everywhere. There is no high involved and it really does take the edge off of the pain.

For a temporary pain reliever I put Epsom salt inside a thin rag and wet it down and put it on my hotspots. It can give some relief bc it helps with inflammation in the muscles.

I hope that you are able to find something that works for you.

December 11, 2022
A MyFibroTeam Member

I use a bubble bath with Epsom salts and thc. It relieves stress, sore joints, and relaxes cramping muscles. I have RA as well as fibro; this works well for me Blessings and gentle hugs.

December 9, 2022
A MyFibroTeam Member

I agree with Sue’s list and Jaycee’s use of heating pad and asking if pain management is available to you. They can provide injections into a variety of places and spaces to help with pain, they can also provide pain patches, creams and pills. Mine provides me with infusion of ketamine to help with the depression, anxiety and chronic pain. I’m sure there are other things that are possibilities. Have you tried CBD products or medical marajuana?

December 9, 2022

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