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A MyFibroTeam Member asked a question 💭
Preston, UK

Hi has anyone been able to get benefits for fibromyalgia I was told it’s not a serious condition that warrants benefits ie PIP any advice would be helpful.

November 20, 2022
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Answer Summary

Members shared their experiences navigating disability benefits for fibromyalgia, acknowledging that PIP and similar programs are notoriously... Read more

Members shared their experiences navigating disability benefits for fibromyalgia, acknowledging that PIP and similar programs are notoriously difficult to secure on the first attempt but encouraging persistence and reapplication as conditions worsen. Several members emphasized the importance of gathering strong evidence from doctors, documenting how fibromyalgia impacts daily life, and seeking help from organizations like Citizens Advice Bureau or Fibromyalgia Action UK, with some noting that legal assistance or advocacy made the difference in ultimately getting approved. A recurring theme was the frustration of proving invisible pain to authorities, balanced by the hopeful reminder that many members eventually succeeded after multiple attempts and that fibromyalgia's debilitating nature does qualify as serious.

A MyFibroTeam Member

Maybe I should try again and see how I get on

November 21, 2022
A MyFibroTeam Member

I had to apply twice but now I have it ongoing as they know I'm not getting better

November 21, 2022
A MyFibroTeam Member

How many times did you apply to get pip

November 21, 2022
A MyFibroTeam Member

I have been able to get pip including mobility and I'm on universal credit (disability) as I'm unfit for work mainly due to fibro.
I would advise you to try and get in touch with citizens advice or someone similiar who can help you with the forms and everything else. All the best.

November 20, 2022
A MyFibroTeam Member

I wish I had done that when I was younger. Because a couple of decades later I was so much worse.

November 20, 2022 (edited)

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