I was never diagnosed with chronic fatigue. But when I first had symptoms that led me to seek diagnosis they were primarily extreme fatigue and strange neurological symptoms (and not joint pain or muscular pain) as well as terrible sleep troubles (insomnia, poor sleep, exhaustion). That was 13 years ago. I was diagnosed with fibro eventually (after many years). Initially I thought I was not a fibro candidate because I lacked the pain element. Anyway now- when I have flare-ups they are now much more pain oriented (muscular) and now I have chronic joint pain ( in the morning and also if I sit or lay for a while) so I seem to have more classic fibro symptoms now (in addition to now having tender spots which I did not have previously). Anyway all this to say that I no longer have chronic fatigue feeling. Not sure why? I am very very careful about getting my sleep- I don't drink alcohol, only tea in the morning (no caffeine after 11 am). I go to bed by 10 pm every night, don't watch tv or movies or go on computer past 8pm to give my eyes a break from that light and my brain a break from stimulation ( I will read a book), etc etc. I still have nights I can't sleep and that awakens pain and all kinds of symptoms but it is rare for me to have more than one or two bad nights in a row now. I don't know... I just offer this as a hope that maybe for you too this aspect will not be so prevalent in the future for you? Also want to add that I have children too and when my children were young- it would have been impossible for me to be so good about my sleep habits! I was up at all hours taking care of babies then toddlers and later on trying to do laundry or dishes or lunches for school etc etc! My kids are in high school now and though i am still a very involved parent I do for sure get to sleep more! So it could also be circumstantial to our lives and what we are doing and what we have to do etc. But I just want to offer that for me at least- chronic fatigue was a serious complaint of mine for several years but I would not currently list it as one of my concerns.

Good luck! Take care!

I have had fatigue for as long as I have had fibro. I think it is getting worse as time goes on just like the pain.

Hi my initial diagnosis was chronic fatigue but as the pain in my joints was wide spread rather than just pain in a bad knee for example the rheumatologist diagnosed fibro as I also had pain response in the points on the body associated with fibro

Thanks for all your replies.

I also have a very strict routine for sleep and dont drink any alcohol or caffeine due to sleep problems.

Has anyone been offered diffrent treatment for CFS then fybro?

Mine diagnosis got lumped in together aswell.

Me to. And it is the most annoying part.