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A MyFibroTeam Member asked a question 💭
Waterloo, IN

How do you maintain focus of positivity? I was in severe pain this morning from my hips down to my toes. It hurt to move, it hurt to sit, and it hurt to walk. I wanted to cry, the pain was overwhelming. My thoughts turned negative. I thought dark thoughts like If I didn’t have these legs there would be no more pain. Then when I was kooking at Facebook, I saw a picture of a man running beside a boy who only had one leg. I felt guilty for my dark thinking. I automatically thought there has to… read more

May 3, 2022 (edited)
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Answer Summary

Members rallied around a question about maintaining positivity during severe pain, sharing deeply personal strategies for getting through the... Read more

Members rallied around a question about maintaining positivity during severe pain, sharing deeply personal strategies for getting through the darkest moments. Many community members described leaning on faith, prayer, and Christian music as their primary anchors, while others found relief through movement, hot baths, Epsom salt soaks, topical pain gels like Voltaren, and creative distractions like crafting, reading, or watching comedy. A recurring theme was that negative thoughts during intense pain are normal and human, and that allowing yourself to cry, rest, and reach out to community can be just as powerful as staying positive.

A MyFibroTeam Member

Eimmarg hi, I also use the diclofenac. My Dr gave me a prescription, my copay makes it much less expensive. He also warned me of side effects concerning cardiac and possibly B/P problems. In the prescription kind there is a card that shows the dose you can use. Then when I picked it up the pharmacist told me to be careful not to over use. I love how much it helps me but my heart
starting pounding so I decreased the areas I was putting it on. I felt better in a few hours. So be careful my dear friends. What a bummer, right? Such a great product. Take care and Happy Mother's Day to all you mamas🌹💖

May 8, 2022
A MyFibroTeam Member

@A MyFibroTeam Member, it's human to feel negative or have negative thoughts once in a while because it helps us to the reflection on things we have achieved and see other people's lives before bringing us to realisation, it could be worse. I seek the presence of God and seek His comfort to help have positive thoughts😀. Pain brings us to our lowerest🙃. But we are stronger than we think. I pray you feel better soon and think Happy Thoughts 🥰

May 3, 2022 (edited)
A MyFibroTeam Member

I'll be honest Margaret. I can't always maintain a healthy, positive outlook. It's so hard when you're in pain 24/7 and the tx's we do have either don't work or have terrible side effects. We just do the best we can with what we have to work with.😖
I don't have to tell you all the things we keep hearing...exercise, meditation, etc. I just stay away from folks if I find myself being too negative so they don't have to be "brought down" also! Please don't feel guilty about how you feel. Your feelings are valid; they're yours, but try to find something positive and reach out if you need to chat💖😘. Love, gentle hugs dear sister

May 3, 2022
A MyFibroTeam Member

My new thing is I bath in voltaren cream (I use all overlol) I buy over counter it’s expensive but when I am climbing the walls it helps the doc also give me a precription but I always over use it so I buy more it is diclofenac sodium topical gel 1% nsaid for me amazing

May 7, 2022
A MyFibroTeam Member

I need to recommit to keeping a brighter attitude DAILY. Some days I do better than others, but my point is that this is a DECISION I have to make regularly (and there are days when I lose count of how many "start-overs" I make) 😀
I am trying to re-start a sewing project and when the weather allows, to take a walk - or drive to a park and sit outside to remind myself that life is so much more than pain.
Rainy days/overcast skies (today) are harder - yet tomorrow may be clear! I used to be good at this stuff - then .... well, NOW I get to begin once more.

May 3, 2022

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