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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

CMT And Fibro?

CMT And Fibro?

In 2020 I got diagnosed with Charcot-Marie-Tooth disease. My neurologist told me I've have had this since I was younger but as I am getting older the disease is progressing in my body,and boy do I feel every inch of it. Between fibromyalgia, Diabetes, CMT, CFS I always feel like I'm low on energy. My pain tolerance has gone to the roof, and my pain management team has pretty much has done little to nothing! wanted to know has anyone elese gotten diagnosed with this disease? If so what pain… read more

posted 6 months ago
A MyFibroTeam Member said:

Hello, i recently got genetic testing which showed a mutation in LRSAM1 which causes a rare CMT2P. I have not seen my neurologist since the results came back. My symptoms involved muscle twitching, nerve pain and vibrations, fatigue and muscle weakness, pain in my hands and feet. When i talk to my neurologist about the results i will update you on plan of care. Which type of CMT do you have?

posted 6 months ago
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