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CFS And Breathing Irregularities

A MyFibroTeam Member asked a question ๐Ÿ’ญ

This is recent research and I can relate to the superficial breathing that leads to hyperventilation. There's also mention of virus triggering CFS in some cases.

https://www.sciencefocus.com/news/long-covid-pa...

December 31, 2021
 โ€ข 
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Answer Summary

Members connected over shared struggles with sleep apnea and breathing difficulties, with several noting they've been waiting months or years... Read more

Members connected over shared struggles with sleep apnea and breathing difficulties, with several noting they've been waiting months or years for replacement CPAP machines after the Phillips recall, leading to dangerous episodes of stopped breathing and exhausted, anxious partners. Many members described stopping breathing 10 or more times per hour without their devices, waking up gasping or with chest pain, and feeling as though they're running a marathon in their sleep. A recurring theme was the compounding challenge of managing chronic fatigue or fibromyalgia alongside untreated sleep apnea, with members supporting one another through shared frustration, concern, and practical coping strategies like deep breathing exercises.

A MyFibroTeam Member

My c-pap Phillips was recalled and still waiting on replacement machine. I can tell the difference in my sleeping without it

January 1, 2022
A MyFibroTeam Member

I use CPAP too. I understand why it would be uncomfortable in the heat and humidity, those face masks and tight bands, ugh. They oftentimes leave marks on my face for hours in the morning.

Have a great day. ๐Ÿ’›๐Ÿ’—

January 1, 2022
A MyFibroTeam Member

Hi Arlene I take like a minimum of 10 per hour and wake up tired every day as I was told itโ€™s like Iโ€™m running a 10K marathon in my sleep. Hope you get it soon as my wife donโ€™t sleep well because she worries about my episodes and seen it many times saying itโ€™s scary for her.

January 2, 2022
A MyFibroTeam Member

Hi Arlene, i can as well. There are times I take it off thinking I'm gonna stay awake for a while and then I fall back to sleep without it on and I wake up gasping sometime later, my chest actually hurting from holding my breath in.

I hope you get a new machine soon. It can be quite dangerous without one depending on how many "episodes" you have per night. Do they promise to replace it?

๐Ÿ’—๐Ÿ’›๐Ÿ’›๐Ÿ’› Happy New Year evening โœจ

January 1, 2022
A MyFibroTeam Member

I notice i breathe very shallow,, and especially when sleeping,, i have been working on deep breating exercises

January 7, 2022

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