Interstatial Cystitis | MyFibroTeam

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Interstatial Cystitis
A MyFibroTeam Member asked a question 💭

Hi does anyone out there deal with IC or painful bladder syndrome? I am in so much pain now. It is unrelenting. I feel discouraged and overwhelmed at times. So wore out. I have tried everything but nothing is working. I made an appointment with the urologist. Not sure what else to do.

posted May 5, 2021
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A MyFibroTeam Member

I was having a lot of pain and pressure and it turned out I have fibroids

posted May 12, 2021
A MyFibroTeam Member

No. I just have lots of uti.s.. I really don’t know as I’m always uncomfortable but the dr. Doesn’t seem too concerned. Sounds miserable

posted May 10, 2021
A MyFibroTeam Member

Soreintexas
Yes, I have had the same problem for years. Many years the urologist instilled Rimso+ Steroid every month in my bladder. It seemed to help me a lot. He retired and a new dr said it does not help. Made me feel crazy. Anyway, last few months has been bad. I understand IC is common among those with fibro.

Do see a urologist. Only they can look in your bladder and know what is going on. It is an office test and not painful except for your dignity.
Lee in Dallas

posted May 9, 2021 (edited)
A MyFibroTeam Member

*raising my handsI was diagnosed in 1999 but according to my doctor and my records I should have been dxed in 1991.

I am glad you have made an appt with an urologist for they are the ones who can diagnose you with IC.

If I can be of any help please just ask.

Sharon

posted May 6, 2021

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