I have been rolling this thought around in my head since I 1st heard the term "long haulers" in relation to Covid19. I would say, "that's what I've dealt with for years and doctors just ignore me or gloss over it and say - there is nothing they can do for me." I've had Fibromyalgia since I was a child. I have dealt with so many symptoms, doctors, tests, procedures, medications the ignorance, rudeness and being written off as a drug seeker or having psychological issues and my pain AND ALL THESE OTHERS SYMPTOMS are just "all in my imagination." But now that Covid is on the scene, they can't just dismiss those long hauler symptoms... so maybe they will address it? Maybe they will actually discover a connection between a virus and the permanent affects it has on the body? Maybe they will expand that virology study and look at viruses to include those that can cause Fibromyalgia and CFS/ME to be long haulers? We've been screaming and crying about it for years and it falls on deaf ears....and it takes a pandemic for people to take it seriously? Why? Because people die from Covid but not from Fibromyalgia so it doesn't warrant the research and a relief for the sufferers? The tide needs to change. This data needs to be in the hands of those virology that are looking at Covid Long Haulers to see what dots connect. I have always believed my Fibromyalgia was caused by a virus in which I got deathly ill. If they can research and find a way to help Covid long haulers, maybe they can share that with those of us with Fibromyalgia? Too much time has passed with no relief, no cure, no certain cause given and not enough research has been poured into those areas because I am now 57 years old. 38 years living with this. I want to see results. I want answers.

Thank you for sharing.

Straw,
wow that is very useful info thanks for posting :) hugs and love to you, Nancy

This is the 2nd screenshot of the article I just posted.

A truly welcome correlation, timely and crucial!

Well said you have put that far better than I ever could but everything you say is so very true and spot on. Every time I see the headlines or term long haulers of covid 19 makes me react with..what about us... sufferers of fibromyalgia have been putting up with these symptoms daily most of us for many years with no research done and something there isn't a cure for brushed to one side and thought of as a hypochondriac by many and as a result. Maddens and sickens me so much to know it's took a pandemic with people known as long haulers to highlight what we fibromyalgia sufferers have been going through for many years without recognition understanding and empathy. These symptoms aren't new or only exclusive to "longhaulers" of covid they are real symptoms we have been suffering with for many years!!.. in my own experience my fibromyalgia developed after suffering with pneumonia. An illness I would say very simular to covid 19 but that is just my personal experience of how I developed fibromyalgia and know for many it's a different story but with same outcome of a chronic debilitating no cure illness with the very same daily symptoms suffered for more years than we dare to think of.