Hi fellow fibro warriors. Lately I've been feeling like my symptoms are worsening over the years. Pain is getting worse as is forgetfulness and anxiety. I'm afraid to drive or go anywhere by myself. Seems like I'm having less and less "good days" and sliding down fast. Not sure if this is a real thing or just my imagination.

I suffer with fatigue more than pain, or maybe I manage/cope with the pain better than I cope with the fatigue.

I have well-meaning friends who say things like “how’re you sleeping” or “have you tried lavender?”... etc and I get so frustrated that people don’t understand, it’s irrelivant how much sleep I’ve had, it does not refresh me and I’m still fatigued, day in, day out, no matter what I do or don’t do.

One description I’ve come up with is “it’s so tiring to move and my body feels so… read more

In the hopes of pinpointing the onset of a flare up-being new to this and all- what little clues have you learned to spot that warns you a flare up is coming? Whats the longest youve experienced?

Does your brain fog and memory loss get worse under stress or is it consistent?

I have been diagnosed with fibro, me/CFS and POTS, with me/CFS being the worst. I still manage to somehow function and raise my children, though extremely limited. I have had neighbors and family say that getting old is hard business (mind you I'm 30). I sometimes stop and wonder if really I could just "snap" out of this and maybe it is a mental issue. I know what I'm experiencing is real. And I most of the time am emotionally resilient. But sometimes when I am pacing I wonder, maybe I'm setting… read more

Hi Everyone,

For years when I come home after being out I find myself sitting in my car for about an hour or more unable to move feeling exhausted and down. For a long time I thought it had to do with my PTSD but tonight I think it is due to fibro fog and fatigue??
Can anyone relate? Thank you in advance!

I have been hearing people talk about a lack of oxygen to the brain being a cause of inflammation, etc. I've seen where some say hyperbaric oxygen can cure fibromyalgia. So as I looked for ways to increase oxygen to the brain (exercise is certainly one), I find where low blood pressure will decrease oxygen to the brain. Wow, I have low blood pressure. The other night it was 81/60, though it is usually 90/70. Do any of you have consistently low blood pressure? Cause maybe this is one path to… read more

This has been a very busy week at work - my body isn’t so happy. My feet hurt even when I first get up in the morning. My left elbow hurts - it’s usually the first body part to experience pain.

What concerns me today though is that I’m struggling to speak properly. I’m getting words and letters mixed up like saying “baper pag” instead of “paper bag”. Does anyone else have this problem? It’s a bit scary.