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A MyFibroTeam Member asked a question 💭
Stockport, UK

I've had a migraine for 5 years all day everyday, i take medication daily as well as having botox injections into my head every 12 weeks.

For the past week my head feels horrible, I feel drunk and I don't drink, i can't stand the smell of it. I'm staggering when walking, walking into things, feel dizzy and it's now starting to make me feel sick.

I will be ringing my GP on Monday, but any help or advice in the meantime would be amazing

Thanks

October 3, 2020
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Answer Summary

Members rallied around someone experiencing severe dizziness, staggering, and nausea alongside chronic migraines, with many suggesting... Read more

Members rallied around someone experiencing severe dizziness, staggering, and nausea alongside chronic migraines, with many suggesting vestibular migraines or inner ear issues like vertigo, BPPV, or Meniere's disease as possible causes. Several members shared treatments that helped them manage similar symptoms, including newer CGRP injection medications like Aimovig, Ajovy, and Emgality, vestibular physical therapy through balance centers, occipital nerve blocks, propranolol for prevention, and immediate relief strategies like ice packs or hot compresses. A recurring theme was the critical importance of seeing a headache neurologist or neurotologist for proper diagnosis and treatment, staying patient through the trial-and-error process of finding what works, and not giving up hope even after years of suffering.

A MyFibroTeam Member

@A MyFibroTeam Member
I have vestibular migraines. I have been helped by the new injections on the market. Believe me, I was desperate. Meds are Aimovig, Ajovy, and Emgality. If you aren't seeing a headache neurologist do so, SOON. Also, I have complications in neck with occipital neuralgia. My dr did a steroid nerve block and I have had few migraines since.
Not everything helps everyone, but this is my story. I pray all the meds continue to work.
Best wishes,
Lee2

October 4, 2020 (edited)
A MyFibroTeam Member

Hi there I live in the uk, and suffered from migraines for about15 years, then my doctor finally diagnosed me, she started me on propranolol 80mg each day and I have separate migraine tablets which I take if I do have an attack, but honestly these have been a god send, they stopped the migraines straight away. What medication do you take? X

December 16, 2020
A MyFibroTeam Member

Could be a innner ear prob I have this been diagnosed with meineres disease x

October 30, 2020
A MyFibroTeam Member

I have what is called vestibular migraine. I have had numerous balance tests, several times from neurotologists. For years they called my problem Meniere's disease. They still suspect some component of Menieres, but mainly vestibular migraine.
Please see a headache neurologist. There are several new drugs on the market, both to prevent or to treat migraine headache. It may take awhile, but help is out there. Be patient and keep trying.
Doing better in Texas.
Lee2

March 6, 2021
A MyFibroTeam Member

Have you ever been tested for Vertigo? I get migraines, and they are horrible, but I went to a Balance Center, and , although the testing was all day, the Dr. said I have BPPV - which basically
Is Vertigo. I see a Vestibular Physical Therapist, and my Vertigo is so much better. And my migraines are no longer constant, as you described.
Just a thought!
Take care of yourself!

March 6, 2021

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