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Backward Sleep Schedule/Chronic Fatigue; Does Anyone Get Angry/frustrated With Yourself For Not Being Able To Do Everything You Need??

Backward Sleep Schedule/Chronic Fatigue; Does Anyone Get Angry/frustrated With Yourself For Not Being Able To Do Everything You Need??

I'm so backwards with my sleep schedule; on top of that after I'm out of bed it takes me time for my brain & body to be "awake", able to concentrate, etc... By the time I shower & dress & start recalling all I need to do, I am overwhelmed & angry with myself for not doing better & being more normal like I used to be. Every evening I'm upset &… read more

A MyFibroTeam Member said:

Well, I certainly do not feel alone after reading all these posts.

If I sleep 2 to 3 hrs. in a row I am thrilled. It can take me several hours to get to sleep, even if I start really early, so I have given that one up. Usually go to bed around 11 p.m. and hopefully fall asleep by 3 or 3.30 a.m. I am up around 5 again for my meds then try to rest until around 8 a.m.

I push myself some days way to hard to do things, but I haven't conquered my OCD yet.

I find now I will rest sometimes in the afternoon for 1 hr, but I don't sleep.

Learning to accept that this is our new "normal" is hard, but, we have no choice.

So one day at a time, positive thinking, trying to realize that we accomplished 1 thing or nothing during the day we have to accept.

When pain is really bad I don't get much of anything done.

So together, we will cheer one another on and we will get through this.

I did give up looking at my phone later in the evening and that has helped a bit.

Love to all.

LaRosa

posted about 1 month ago
A MyFibroTeam Member said:

Hi Suzzz😊🌷! ! Yes I think the majority of us go through this everyday/every night! It’s very frustrating😖! And I can’t nap during the day, I’ve just never been able to. I can fall asleep at night ok, but never stay asleep. I usually average 3 consecutive hours a nite, if I get 4 consecutive, I’m thrilled! Don’t be too hard on yourself. It took me some time to realize that the old me wasn’t coming back, so I make the best of the new norm me, and don’t beat myself up as much anymore. Don’t get me wrong, it can still be very frustrating, but not as bad as before. I’ve learned to listen to my body more, and know my limits, although I still push it sometimes... and then I pay. Be easy on yourself, and realize that you’re doing the best you can! Sending you hugs🦋💜🦋, Love Deb

posted about 1 month ago
A MyFibroTeam Member said:

Well, I certainly do not feel alone after reading all these posts.

If I sleep 2 to 3 hrs. in a row I am thrilled. It can take me several hours to get to sleep, even if I start really early, so I have given that one up. Usually go to bed around 11 p.m. and hopefully fall asleep by 3 or 3.30 a.m. I am up around 5 again for my meds then try to rest until around 8 a.m.

I push myself some days way to hard to do things, but I haven't conquered my OCD yet.

I find now I will rest sometimes in the afternoon for 1 hr, but I don't sleep.

Learning to accept that this is our new "normal" is hard, but, we have no choice.

So one day at a time, positive thinking, trying to realize that we accomplished 1 thing or nothing during the day we have to accept.

When pain is really bad I don't get much of anything done.

So together, we will cheer one another on and we will get through this.

I did give up looking at my phone later in the evening and that has helped a bit.

Love to all.

LaRosa

posted about 1 month ago
A MyFibroTeam Member said:

I believe it troubles all of us that we no longer can do what we used to but I'm feeling so much better than I did not too many years ago, that I'm so very thankful. Thankful that I just kept telling myself to keep moving when I really didn't want to. Thankful that God led me to the right doctor to suggest certain changes from medication to supplements allowing me to heal in babysteps as to not overwhelm me.
I sure can't do what I used to but have come so far from where I was at. I hope the best for all of us.

posted 8 days ago
A MyFibroTeam Member said:

I can totally relate. :-( Most of the time I feel useless. Going from being able to do above and beyond to hardly anything is very depressing and a big downer. Having this website and being able to talk to others with similar symptoms has been a heaven send. Trying to keep the pain down has been the key for me. Keep your goals small(baby steps) and one day at a time. I've been able to sleep better since I started magnesium(natural calm) a couple hours before bedtime. I watch tv, turn off phone and try to relax before bedtime (hot shower and heating pad to relax muscles). I listen to a audio book with a sleep timer as fall off to sleep. I usually wake up several times during the night and turn the book on again if needed. Accepting I have limitation has been the hardest for me. Just keep trying! Susan, you're in my thoughts and prayers!

posted 20 days ago
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