Well, I certainly do not feel alone after reading all these posts.

If I sleep 2 to 3 hrs. in a row I am thrilled. It can take me several hours to get to sleep, even if I start really early, so I have given that one up. Usually go to bed around 11 p.m. and hopefully fall asleep by 3 or 3.30 a.m. I am up around 5 again for my meds then try to rest until around 8 a.m.

I push myself some days way to hard to do things, but I haven't conquered my OCD yet.

I find now I will rest sometimes in the afternoon for 1 hr, but I don't sleep.

Learning to accept that this is our new "normal" is hard, but, we have no choice.

So one day at a time, positive thinking, trying to realize that we accomplished 1 thing or nothing during the day we have to accept.

When pain is really bad I don't get much of anything done.

So together, we will cheer one another on and we will get through this.

I did give up looking at my phone later in the evening and that has helped a bit.

Love to all.

LaRosa

Hi Suzzz😊🌷! ! Yes I think the majority of us go through this everyday/every night! It’s very frustrating😖! And I can’t nap during the day, I’ve just never been able to. I can fall asleep at night ok, but never stay asleep. I usually average 3 consecutive hours a nite, if I get 4 consecutive, I’m thrilled! Don’t be too hard on yourself. It took me some time to realize that the old me wasn’t coming back, so I make the best of the new norm me, and don’t beat myself up as much anymore. Don’t get me wrong, it can still be very frustrating, but not as bad as before. I’ve learned to listen to my body more, and know my limits, although I still push it sometimes... and then I pay. Be easy on yourself, and realize that you’re doing the best you can! Sending you hugs🦋💜🦋, Love Deb

I can relate to this completely. A have now resigned myself to the fact that this is how my life will be from now on. I've been a lot kinder to myself and happier since I made this decision. I give my worries to God and do what I can when I can.
Love Sylvia xxx 😊

Well, I certainly do not feel alone after reading all these posts.

If I sleep 2 to 3 hrs. in a row I am thrilled. It can take me several hours to get to sleep, even if I start really early, so I have given that one up. Usually go to bed around 11 p.m. and hopefully fall asleep by 3 or 3.30 a.m. I am up around 5 again for my meds then try to rest until around 8 a.m.

I push myself some days way to hard to do things, but I haven't conquered my OCD yet.

I find now I will rest sometimes in the afternoon for 1 hr, but I don't sleep.

Learning to accept that this is our new "normal" is hard, but, we have no choice.

So one day at a time, positive thinking, trying to realize that we accomplished 1 thing or nothing during the day we have to accept.

When pain is really bad I don't get much of anything done.

So together, we will cheer one another on and we will get through this.

I did give up looking at my phone later in the evening and that has helped a bit.

Love to all.

LaRosa

I believe it troubles all of us that we no longer can do what we used to but I'm feeling so much better than I did not too many years ago, that I'm so very thankful. Thankful that I just kept telling myself to keep moving when I really didn't want to. Thankful that God led me to the right doctor to suggest certain changes from medication to supplements allowing me to heal in babysteps as to not overwhelm me.
I sure can't do what I used to but have come so far from where I was at. I hope the best for all of us.