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A MyFibroTeam Member asked a question 💭
Canada, KY

I know there are articles explaining opioids narcotics don’t work on fibro sufferers. Is this true? Has anyone had relief using them? Which ones ? Or just in general if don’t want to say.

Thanks for answers. Fibro hugs to you all. Take care.

September 3, 2020
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Answer Summary

Members shared deeply divided perspectives on using opioids for fibromyalgia pain, with some describing significant relief from medications... Read more

Members shared deeply divided perspectives on using opioids for fibromyalgia pain, with some describing significant relief from medications like Vicodin, Tramadol, Oxycodone, and Nucynta when taken responsibly, while others reported that opioids worsened their pain over time or caused side effects like constipation and breathing difficulties. Several members expressed frustration about the opioid crisis leading to strict prescribing restrictions, mandatory monthly doctor visits, and urine screenings, which they feel unfairly punishes chronic pain patients who use medications responsibly while leaving them undertreated or forced to suffer. A recurring theme was the importance of taking opioids only when truly needed to avoid tolerance and addiction, with many members emphasizing that while pain relief is crucial, newer fibromyalgia-specific treatments and careful weighing of risks and benefits with a trusted physician may offer better long-term outcomes.

A MyFibroTeam Member

@A MyFibroTeam Member, I’m so sorry your pain medication was taken away.

I also have been prescribed opiates, they definitely help me. I don’t take them a lot, but when I need them they really help. I’ve never been addicted to them and it’s a shame that drug addicts have ruined it for people that really need them. I was recently admitted in the hospital with a very painful blood clot in my abdomen. My nurse wouldn’t give me anything for pain, she said because of the opioid crises ......😳 really. I was in enough pain to go to the hospital, they found a huge blood clot that they said was very painful.....but wouldn’t give me anything for pain. They finally gave me a Vicodin about 12 hours later, my pain was way past what a Vicodin could do and they said they would only give me 1 every 12 hours. I’m 62 years old, was horrible pain And all you can do is tell me about the opioid crises 😡 So many people have had their pain pills taken away, some weren’t even weaned from them. How many people in pain have to die before they figure out taking pain pills from people that really need them. Some of these people are Are going to the streets to get their drugs (which is dangerous and some have died because it was laced with Fentanyl) and others have taken their own life because they couldn’t take the pain anymore 😢

Here are a few stories of how taking pain medication away from people that need it, is not a good idea.

http://accurateclinic.com/wp-content/uploads/20...

September 3, 2020
A MyFibroTeam Member

@A MyFibroTeam Member from what I understand they are looking to see if you have other illicit drugs in your system and if the narcotic is in the urine...if there is not they may assume you are not taking your prescription and selling or giving away your pain pills.

September 5, 2020
A MyFibroTeam Member

oh and yes,, i do have to pee in a cup every 6 months,,, i dont take them every day (although lately i have at night to sleep because i have really been pushing myself and painting and decorating my house) and i only take 1/2 5mg which is very low dose,, sometimes i need a whole one,, but when a whole one stops working i go back to none at all because i also dont want to get addicted,,, but i am going to say that i dont really feel like my pain is managed very well,, there are never days when i feel well ,, ever... there are just days when i hurt less,,

September 4, 2020
A MyFibroTeam Member

I take Nucynta which is one of the newer opiods. It really works well for me but I think that is because I take it only when I have a really bad flare..

September 4, 2020 (edited)
A MyFibroTeam Member

Terrible they wouldn’t give you anything to help you. So sorry. Thanks for replying and the article stories. :) please take care.

September 3, 2020

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