Fibromyalgia Condition And Actual COVID-19 Illness Experience | MyFibroTeam

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Fibromyalgia Condition And Actual COVID-19 Illness Experience
A MyFibroTeam Member asked a question 💭

If you have suffered from an actual COVID-19 illness and you wouldn't mind sharing what is was like, please post here. Even if you didn't have an actual positive test result, if you are fairly sure it was COVID please post your experience. Also include what treatment you used while ill.

I am nervous about contracting COVID, but I have not had COVID or any virus or flu since being diagnosed with fibromyalgia. Since I am already in a constant painful flare, this adds to my concern.

posted July 27, 2020
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A MyFibroTeam Member

I had covid-19 1st week of March and recently had a positive antibody test. I’ve had fibromyalgia for years and my symptoms worsened with age. I feel like I have the flu everyday with my body aches. My 1st symptom was a dry cough, like a tickle that started in the afternoon. I woke up at 3am with the worst nausea ever (I have zofran for my migraines so I took a tablet and went back to bed with my tummy just rolling. Within 3 hours I had terrible body aches and a fever. I laid in bed for 3 days with flu like symptoms, fever & chills. The fatigue was unexplainable. This virus totally took over my body and I experienced a different symptom daily. I had chest pain that felt like I’d been lifting heavy pavers. My nose felt so dried out one night before bed so I used my nettie pot and when I woke up I couldn’t smell or taste a thing. I thought oh no did I damage something with my nettie pot! I would get this sensation that someone had their hand over my mouth and nose smothering me. This would come and go in waves and just gave me a panick feeling.
It took 14 days to feel somewhat normal. The doctors office told me to just stay home. I got the impression they were not sure what to say to me. My husband came down with same symtoms three days after me. After seven days of a fever and severe asthma the doctor office told us he could come in and they would listen to his lungs. At this time he qualified to be tested for covid testing because he had asthma. We got his positive test results twelve days later. I heard on the news about the same time that the loss of smell and taste was a symptom. By the time this info was on the news and we received the positive results we were starting to feel better.

posted July 31, 2020
A MyFibroTeam Member

You can't know if you have covid without a test result. But I have had flu before and had to be hospitalized. It was no fun! I've also had pneumonia had to be hospitalized then also. It's my understanding that us with weakened immune systems don't want covid.

posted July 27, 2020
A MyFibroTeam Member

Part 2 of my Covid journey

The next 2 weeks my fever was up and down between 101 to 104, I just slept most of the time. On April 18th my stomach started hurting, I didn’t think much of it because I have IBS and have a stomachache a lot. But it got worse daily and wasn’t going away when I woke up. Usually when I have a bad stomachache, when I wake up in the morning, it’s gone. This pain was constant. I thought maybe it’s the virus going thru my digestive system 🤷🏼‍♀️ The pain got so bad on April 24th, I packed a bag and asked my husband to take me to the hospital. I’ve had 2 children, I can honestly say, the pain I was having was worse than labor. I have a very high pain tolerance, but I couldn’t take that pain anymore. The process getting to the ER was strange. We were stopped about a block before the ER entrance, I told the security guard I did have COVID but it was a month prior, I was coming in for abdominal pain. They made us wait in line in our car along with other Covid patients until we were finally able to drive up to the ER. It was so fast at that point my head was spinning. They put me in a wheelchair and flagged my husband to go 😳 I didn’t get to even kiss him or say goodbye. When they were taking my vitals outside another car pulled up, they took an elderly lady (80-85) out of the car and put her in a wheelchair, she looked so frail and out of it. Her son got out of his car to kiss her, he was crying and hugging her and the security guards were screaming at him to get in his car and leave. It was a heartbreaking scene because I’m sure that’s the last time he saw her alive. After they wheeled me into the ER I don’t have any memory until I got up to my room 8 or 9 hours later. I know I didn’t pass out, I was texting with my kids, husband and a couple girlfriends the whole time, I just don’t remember it. My psychiatrist said I blocked it out as a coping mechanism.

Continue to next post

posted August 16, 2020 (edited)
A MyFibroTeam Member

@A MyFibroTeam Member ❤❤❤ @A MyFibroTeam Member
Thank you so much for sharing. It sounds terrible. I am so glad you are okay.

I am trying to make sure I am prepared. Was there any medicine 💊 that you suggest to have on hand besides treating the fever, body aches and coughing? I have never used a nettle pot, but I do have some Mucinex tablets I use if I get cold symptoms.

posted August 1, 2020 (edited)
A MyFibroTeam Member

I believe I had it in December January. Three Weeks before I Landed in the hospital for three days, I had constant temp of 99.1. Felt crummy etc. then in January it shot up to 100.4. At one point I couldn’t breathe very well or walk across the room. I coughed up over a cup of blood clots, severe chest pain like I never had before., crying it was so painful. ER sent gave me IV antibiotics and sent me to hospital. Had more IV antibiotics. Temp down and went home in three days. Now mind you, I have a lung disease called Bronchiectasis and a autoimmune disease.
Try not to worry. There’s a lot of fear on the news. 🤗🤗🤗

posted July 27, 2020

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