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A MyFibroTeam Member asked a question 💭
Melbourne, AU

I have muscle spasms, like many others, but wondering if anyone has experienced an extended and repetitive spasms that includes an entire limb arm, leg(s) or part of their torso?
I’m either conscious or if asleep it wakes me, but I can’t make it stop. Have to ride it Out.
After I’m exhausted can’t stay awake.
It tends to happen after a period of stress.

July 11, 2020
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Answer Summary

Members discussed the critical distinction between typical fibromyalgia muscle spasms and full seizure-like episodes, with some describing... Read more

Members discussed the critical distinction between typical fibromyalgia muscle spasms and full seizure-like episodes, with some describing intense episodes involving loss of speech, eye rolling, aggressive whole-body jerking lasting up to 30 minutes, and complete exhaustion afterward that left neurologists baffled since seizures are not considered a fibromyalgia symptom. Several members shared practical management strategies, including taking Cyclobenzaprine when episodes begin, experimenting with different forms of magnesium to reduce cramping and spasms, and removing major stressors like full-time work to decrease episode frequency. A recurring theme was the frustration of experiencing symptoms that don't fit neatly into medical categories, leaving members searching across specialties for answers and validation while supporting each other through the uncertainty.

A MyFibroTeam Member

Some come on instantly like that and then I take the pill, others I can feel coming stronger while I’m sleeping and I know it’s building up for a full cramp or spasm and I take a pill then and it keeps them away for a few days.

July 11, 2020
A MyFibroTeam Member

I have Cyclobenzaprine for when I get these. I only take them when I feel them coming on cuz they make me a zombie but they help. Do you take any magnesium malate? If not, you should take them everyday. 🤗

July 11, 2020
A MyFibroTeam Member

No need to apologise @A MyFibroTeam Member, I’ve just had a brief conversation with @A MyFibroTeam Member before and was hoping I could clarify her question for you.

July 14, 2020
A MyFibroTeam Member

Well, yeah there's a HUGE difference between muscle spasms and seizures, but the original question mentioned muscle spasms, so that's what I replied to. So sorry.

July 14, 2020
A MyFibroTeam Member

Beautifully written @A MyFibroTeam Member. While my episodes don’t last a long I have the eyes rolling back into my head, feel like my head is at the end of a psychedelic tube (maybe that’s the aura feeling you speak of...) & I feel as though I have headphones on as surrounding noise sounds muffled. Completely wiped out afterwards. Bit like you’d expect to feel if hit with a ray gun lol. Mine have not been as frequent now I removed the stress of full time work. If they start up again I will be looking for another neurologist.

July 13, 2020

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