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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Rogers, AR

Does anyone get sores in your mouth and/or throat during a flare or a particularly stressful time?

June 18, 2020
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Answer Summary

Members confirmed that mouth and throat sores are a common experience for many living with fibromyalgia, with several describing recurring... Read more

Members confirmed that mouth and throat sores are a common experience for many living with fibromyalgia, with several describing recurring canker sores, throat ulcers, and burning mouth syndrome that intensify during flares or stressful periods. Many shared that additional factors can contribute to sores, including medications, inhalers that cause thrush, TMJ and jaw clenching, and food intolerances like salicylates, with one member noting they have to avoid spicy, tart, and acidic foods entirely to prevent worsening symptoms. A recurring theme was the layered sensitivity of fibromyalgia making the mouth especially vulnerable, though members also encouraged ruling out other conditions like lupus and seeking medical guidance when symptoms persist or worsen.

A MyFibroTeam Member

I have burning mouth syndrome, which is pretty much a raw tongue, and mouth, very sensitive to spicy or tart foods. All around the edge of my tongue, it's always raw and I have a strip down the middle of my tongue that looks like super raw skin. Then I have canker sores on my gums and inside my cheeks. I bite the inside of my mouth and clench my jaw because I have TMJ. I can't wear a mouthpiece because it makes my mouth sorer. I think it's a fibro thing, because we are so sensitive to light, touch and foods that we eat. Throw some stress in there and our mouth doesn't stand a chance. That's why I hate eating anymore and just want bland food to eat. Love Mexican food but if it's too hot, I pay for it. The only thing that makes my mouth happy is icecream. It's cool and sweet and makes me feel better.

June 18, 2020
A MyFibroTeam Member

Yes, I get mouth ulcers. But I think I may have one in my throat now. It came on suddenly yesterday, this pain in a particular spot when I swallow. Has that ever happened?

June 18, 2020
A MyFibroTeam Member

That's why I can't eat so many food8,especially fruit and citrus.

June 24, 2020
A MyFibroTeam Member

yes I have found it is an intolerance of Salicylates ( acid in food ) download a diet sheet & get off all the extremely high & high foods etc for 3wks & then go back on normal diet - you'll soon know.

June 24, 2020
A MyFibroTeam Member

Oh wow I didn't know that was a fibro thing! I have been having a persistently red throat lately for about a month and have noticed dark veins and also a little red sore/bubble at the back of throat. I may go to an ent just to double check but I was worried!

June 23, 2020

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